Our Trustees

On 18th June 2018 Jane founded SEDS to increase local specialised support and improve awareness, knowledge and understanding of EDS/HSD/JHS and co-occurring conditions plus advocate in key areas of health, social care, education and transport accessibility locally.

Chris has been a Director of Seofon Business Services since it’s foundation in 2012. With over 30 years of corporate experience, prior to the formation of Seofon, Chris has a background in team supervision, investigation and compliance work.

Having volunteered for SEDS for a year now, Monica feels an affinity to EDS sufferers as she understands some of the conditions they live with and is keen to raise the profile of SEDS and to support its members.

Clemmie recently graduated from Durham University where she studied Biological Sciences. Having had work experience in both Hospitals and Care Homes for those with severe learning difficulties, she wishes to gain some more experience working for healthcare charities.