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Jane Green, MBE

Chair & Founder of SEDSConnective

About Jane

Biography

Jane Green MBE is the Chair and Founder of SEDSConnective. In 2023 she was awarded an MBE for services to neurodivergent people and those with related joint hypermobility conditions, including Ehlers-Danlos syndromes. She had her Investiture at Windsor Castle on 4th October 2023, conducted by HRH Prince William.

  

In 2023 she was also elected as a Founding Fellow of the Chartered College of Teaching FCCT. She has MA Ed. (Management and Leadership) Autism focus,  ex.Assistant Headteacher,  Adv.Dip.Ed. (Child Dev.), PGCE Sec. Qualified Teacher Status (QTS),  BSc  (HONS)  Psych. 

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Background

Growing up, Jane had various injuries and pain. At school she was placed in the bottom set and ultimately left school early at aged 16. At this point she only had two qualifications and was considered "dim" and a hypochondriac. She later had two children who were both ill and one multiple neurodivergent, with a learning disability. In order to help her children, other children and their teachers, Jane self-studied whilst bringing up her children as parent and carer single-handed.

 

She became a teacher, Local Advisory teacher, Autism Accreditation assessor then Assistant Headteacher in autism nationally. She was not believed to be different or ill/disabled and had to leave her hard-won career early. Only then did she receive her diagnoses, but was very seriously ill. She always felt there was something missing in training intiatives for Autistic, ADHD, Dyspraxic children but there was no name for it at the time. 

 

Founding SEDSConnective

Jane volunteered for other groups and charities, but felt there must be other people who were both neurodivergent and EDS/HSD. So she started SEDSConnective in 2018 in Sussex, England as a voluntary charity with no funding, no connections, but a huge passion to make a difference and ensure better outcomes for members!
 
The voluntary group grew and is now a charity with global reach. People have resonated with the ethos of a collective doing it for themselves but also constructively connecting where possible with others and allied professionals. This is key as it has better outcomes for others.

Advocacy, Media & Speaking Engagements

Jane is a non-Executive Director sitting on National Boards, co-production DEI&B Boards and Carers Boards. She was co-Chair of the Strategic Oversight Group of the OMMT and work autism expert group, local carers' charity and other forums nationally. She is demand as a speaker for Government and public think tanks.

Her article in Education psych. UK was the second most read blog on hypermobility that year. Jane has contributed over 20 articles and publications. She has appeared in the press and on TV (BBC News) as a spokesperson, as well as on LBC, Radio 4 and Teacher Talk Radio. She has also been interviewed on many podcasts promoting the issues of hypermobility and/or autism. Passionate about designing a School Toolkit for symptomatic hypermobility and voluntarily initiating it.

 

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Jane presented at the School Avoidance conference in the Netherlands with Dr Eccles and the Global Learning Conference in 2023 in Dublin. 

 

Papers

 

Awards & Achievements

2006

2019

2020

  • South East Open University Regional Award and Adult Learner Award for outstanding achievement and dedication.

  • Crawley Heroes Award – Winner

  • BBC Surrey, Sussex, N Hants Carers Award – Commended

  • Applause Awards – Lifetime Achievement/Stronger Together/Stronger Communities/Sports Awards

  • Applause Awards – Lifetime Achievement/Stronger Together/Stronger Communities/Sports Awards

  • Helpforce National Hero Award for covid work supporting others without a break in Sussex and nationally with DHSC and health groups

  • Award from the High Sherriff of West Sussex – for outstanding activity and contribution to the community

2021

  • Awarded by Henry Smith MP - Crawley Coronavirus Community Champion for outstanding support in our community during Covid 2020 and helping save live

2022

  • AK Autism Heroes Awards for best support group and the People's Awards

  • The Platinum Champions Award for outstanding contribution as a volunteer in the year of Her Majesty The Queen's Platinum Jubilee

2023

  • In the 2023 New Year Honours, Jane was awarded an MBE for voluntary services to neurodivergent people (autistic, dyspraxic, ADHD, Tourette’s syndromes) and those with related joint hypermobility syndromes including Ehlers-Danlos syndromes.

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