TAPING : useful or useless ?
by Jane Green MA Ed. It's been around for about 30 years + very useful for symptomatic hypermobile joints, weakened muscles, ligaments....
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"It all started with a lamppost..."
Member Blog: Diane - aged 58 Carer | Teacher/outreach teacher consultant -MA (ASC) I was the kid that attended hospital a lot. Activity...
It’s spider mating season. Can a spider phobia ruin your health?
Jane Green would have answered “yes” to that question a year ago. But in September 2021, she decided to try and cure her fear of spiders...
Did you know people with symptomatic hypermobility can often struggle with food sensitivity?
by Kelly Harris, BA dipNT rCNHC mBANT Registered Nutritionist People with symptomatic hypermobility, #SH #EDS or #HSD can often struggle...
Why you need to know about EDS HSD (JHS) and symptomatic hypermobility in TES by Jane Green MA Ed.
https://www.tes.com/magazine/archive/why-you-need-know-about-eds-hsd-and-hypermobility The question is, how much longer do we have to...
The curious connection between hypermobility and neurodivergence
by Dr J Eccles MRCPsych MSc Ph, Patron of SEDSConnective Funded by the MRC, MQ Mental Health Research and Versus Arthritis, I led a team...
We're now a charity!
We are absolutely delighted to announce that we have been granted charitable status by the Charity Commission. This will open up many...
'Fluffy Supports'
BLOG POST - Greg Rix, 26, teacher from West Sussex and Trustee at www.SEDSconnective.org I sit here writing whilst my beloved is in an...
The Power and Potential of Peer support
By Sue Freeman, 57 from London A rollercoaster ride: that’s how I would describe my physical and mental health since my mid 40s. Although...
STORY TIME : My interoception sense of pain and past issues
Jane Green MA Ed. What happened? July 1st 2019, I went for a little walk. My left foot sunk into a soft dip in the grass verge which...
Trying to arrange care as a young person with complex needs + hEDS
By Grace Thompson, 19 near Brighton in Sussex It is normal to want independence from your parents as you grow up, and it is not always...
Told I was dim, weird, often absent from school- reasons to create the first EDS JHS schooltoolkit
Today is the anniversary of the first ever school toolkit for Ehlers-Danlos Syndromes, Joint Hypermobility syndromes and symptomatic...
Insoles and the Hypermobile Foot (Hypermobility HM Foot)
Advice Piece written by SEDSConnective Advisor Josh Oguntade People often do not know what happens when or why you need an insole. Very...
Bridging the Gap
BLOG PIECE - Karen Windsor - Lymphatic Reflexologist Therapist – Mindfulness Coach. Age 41 - East Grinstead I am diagnosed with 8...
One Big Day!
One Big day was an event hosted on 29th April 2022, for family and friend carers living in West Sussex. Hosted by Carers Support West...
TES Article: Autism : 5 Adjustments Needed in your Classroom
ARTICLE published by TES Magazine - 7th April 2022 - written by Jane Green MA Ed. Educationalist and Chair of SEDSconnective, Jane Green...
'Carers are more than systems and processes'
https://www.scie.org.uk/news/opinions/autism-acceptance Blog by SEDSConnective Chair and Founder Jane Green MA Ed. and Trustee at the...
Thank You Waitrose Community Matters!
THANK YOU to Waitrose Community Matters for generously granting SEDS £333.00 funding towards members' activities. These funds are so...
AutismAcceptance Health Care Needs in Sussex!
2nd April 2022, SEDS worked with local landmarks in Crawley and Brighton to GoGold for AutismAcceptance Day
Autism Acceptance Day
ARTICLE for Carers Support West Sussex by Jane Green, 2nd April 2022 Traditionally April 2nd has been known as Autism Awareness Day with...