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Research- Largest Global study hEDS HSD (hypermobility)
A groundbreaking international survey sheds light on the hidden struggles of thousands living with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders

SEDSConnective
Aug 95 min read


Connective Bodies/Brains - Hypermobility EDS,JH and Neurodivergence (Autism ADHD +)
Emerging research is revealing strong links between neurodivergent conditions such as Autism, ADHD, Dyspraxia, Tourette's dyslexia and physical traits like joint hypermobility, Ehlers–Danlos syndromes and other connective tissue differences.

SEDSConnective
Aug 91 min read


ADHD AUTISM Dyspraxia Tourette's dyslexia in children or young people?
ADHD, Autism, Dyspraxia, Tourette’s, Dyslexia but what about the physical health in neurodivergent children and young people?

SEDSConnective
Aug 41 min read


What Makes Lipoedema Fat Different? The role of the immune system
It's often misdiagnosed as obesity or lymphedema (fluid retention)

SEDSConnective
Aug 42 min read


Understanding the Connection Between Dysphagia, EDS, and Hypermobility Disorders
Dysphagia is where you have problems swallowing.

SEDSConnective
Aug 32 min read


Oh my GERD or GORD!
It’s one of the more common digestive disorders seen with symptomatic hypermobility GERD GORD

SEDSConnective
Aug 32 min read


What is the Beighton Scale / Score
Children are naturally more bendy than adults
Women tend to be more flexible than men
Your usually get much stiffer as you age

SEDSConnective
Jul 212 min read


Ehlers-Danlos syndromes links to Autism and ADHD
EDS Ehlers-Danlos Autism and ADHD plus other conditions mental health

SEDSConnective
Jul 141 min read


It’s Not Just in Your Head...hidden stuggles of neurodivegent health (hypermobilty)
'groundbreaking era of neuroscience'
'masking pain invalidates your self worth'

SEDSConnective
Jun 72 min read


Tourette's helped me embrace the unknowns of chronic illness- hypermobility & Neurodivergence
As a child, my tics and Tourettic Obsessive Compulsive Disorder (OCD) were so severe that I spent four years unable to dress myself and had no free time to do anything fun

SEDSConnective
May 313 min read


The School Toolkit for EDS / JHS: the journey behind it and beyond...
I did this voluntarily as I firmly believed children and young people, education staff needed this now and for future generations

SEDSConnective
May 258 min read


Hypertension and Hypermobility: A Hidden Risk as We Age
When we think of hypermobility, we often focus on joint flexibility, pain, executive functioning, instability, internal pain, fatigue,...

SEDSConnective
May 173 min read


Autism Acceptance Of Brain/Body
'Connecting Autism to Physical Health (Hypermobility)'

SEDSConnective
Mar 313 min read


'You don't know what you don't know'
We may all be “experts” in our own experiences, but memory is fallible, and our recollections can be shaped by emotions, biases, and the

SEDSConnective
Feb 262 min read


RSD: The Invisible Pain of Rejection Sensitive Dysphoria
Do your emotions hit like a tidal wave? Have you ever felt an overwhelming emotional response so intense that it physically hurts? A...

Jane Green MBE
Feb 162 min read


New Study : Hypermobility and emotions are linked to the brain
'People with hypermobility who also feel very anxious had busier brain activity ...'

SEDSConnective
Feb 81 min read


Liberation Art Gallery: a space for creativity and wellbeing
Welcome to Liberation Art Gallery in connection with SEDSConnective At Liberation Art Gallery, we believe art should be for everyone, not...

SEDSConnective
Jan 313 min read


Red, White and Blue are my digits you know? February is Raynaud’s Awareness month
Do your fingers get frozen quickly? Do you find you have to warn people before they offer to shake your hands. Are your feet like blocks...

SEDSConnective
Jan 312 min read


SNAP CRACKLE POP!
Have you ever noticed those cracking, snapping, and popping sounds in your joints? Yes? That's what we call crepitus. It can happen...

Jane Green MBE
Jan 101 min read


My Developmental Coordination Disorder (dyspraxia)
“Around 3-5% of adults in the UK are thought to have some kind of dyspraxia or DCD (Developmental Coordination Disorder)”

SEDSConnective
Nov 29, 20243 min read


Health challenges with hypermobility, Autism ADHD x 4
As a family we don’t fit neatly into boxes. Our bodies and our brains are different.

Jane Green MBE
Oct 31, 20242 min read


POTS and hypovolemia
Dysautonomia is dysfunction of the autonomic nervous system, which controls essential functions like heart rate, blood pressure,...

Jane Green MBE
Oct 28, 20242 min read


Autism, Anxiety and interoception
I was often told 'it was all in my head'

Jane Green MBE
Oct 12, 20243 min read
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