Rare or Rarely Believed? Jane's Story
Blog by Jane Green for Rare Diseases UK as part of Rare Disease Day 2023 Jane Green MBE, Chair and Founder of SEDSConnective a...
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jane green
- Feb 15
- 2 min
Hypermobility in physiotherapy education
My name is Katie, I’m 25 years old from East Sussex. I am currently a third year physiotherapy BSc student at the University of...
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- Feb 13
- 1 min
Time to talk about sex and intimate relations
We asked you to share the ups and downs, and ins and outs , of sex and intimate relations if you are one of us with...
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jane green
- Feb 8
- 2 min
Co-Occurring Physical Health Challenges in Neurodivergent Children & Young People: A Topical Review
Clink on hyperlink below to read the actual Paper. https://www.tandfonline.com/doi/full/10.1080/13575279.2022.2149471 This is an easy...
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- Feb 2
- 2 min
Getting Connected in Crawley
On Monday 30th January 2023 the SEDSConnective workshop/demonstration day took place in Crawley, welcoming the Worshipful Mayor of...
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- Jan 20
- 1 min
New research: Co-occurring health challenges for children and young people
The first publication on neurodivergence (Autism, ADHD, dyspraxia +) and hypermobilty conditions, such as JHS and EDS , in education...
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jane green
- Dec 31, 2022
- 4 min
MBE - me ?
I am deeply honoured and humbled to receive an MBE for my voluntary services to neurodivergent people (autistic, dyspraxic, ADHD,...
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SEDSConnective
- Dec 5, 2022
- 2 min
The Lying Down Work in Alexander Sessions (‘Constructive Rest’) Part I
During an Alexander Technique session, usually I offer the option to lie on my teaching table. Although it is not essential to...
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SEDSConnective
- Dec 1, 2022
- 2 min
Making the Connections: A history of hypermobility research new study out! SEDSConnective webinar
SEDSConnective held an exciting webinar on 20th November 2022, where we heard from Dr Jessica Eccles, Clinical Senior Lecturer and our...
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jane green
- Oct 28, 2022
- 3 min
Our Autumn Newsletter 2022 We are making a difference!
Welcome to our Autumn Newsletter! We are the only expert by experience and voluntary led charity for symptomatic hypermobility...
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jane green
- Oct 18, 2022
- 1 min
WorldMenopauseDay 18th October- RED ANTS - I was told I would be put on Multiple Sclerosis pathway!
by Jane Green I am used to disbelief and rolling eyes but when I asked for help from the doctor that I was suffering from red ants...
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SEDSConnective
- Oct 3, 2022
- 2 min
New Pain advisers for SEDSConnective
We 're delighted to introduce our 2 new pain advisers Dr David Moore, a Reader in Pain Psychology, and Bethany Donaghy a PhD Student. Dr...
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jane green
- Sep 23, 2022
- 2 min
TAPING : useful or useless ?
by Jane Green MA Ed. It's been around for about 30 years + very useful for symptomatic hypermobile joints, weakened muscles, ligaments....
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SEDSConnective
- Aug 31, 2022
- 3 min
"It all started with a lamppost..."
Member Blog: Diane - aged 58 Carer | Teacher/outreach teacher consultant -MA (ASC) I was the kid that attended hospital a lot. Activity...
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SEDSConnective
- Aug 26, 2022
- 2 min
It’s spider mating season. Can a spider phobia ruin your health?
Jane Green would have answered “yes” to that question a year ago. But in September 2021, she decided to try and cure her fear of spiders...
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jane green
- Aug 18, 2022
- 2 min
Did you know people with symptomatic hypermobility can often struggle with food sensitivity?
by Kelly Harris, BA dipNT rCNHC mBANT Registered Nutritionist People with symptomatic hypermobility, #SH #EDS or #HSD can often struggle...
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jane green
- Aug 1, 2022
- 2 min
Why you need to know about EDS HSD (JHS) and symptomatic hypermobility in TES by Jane Green MA Ed.
https://www.tes.com/magazine/archive/why-you-need-know-about-eds-hsd-and-hypermobility The question is, how much longer do we have to...
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Dr Jessica Eccles
- Jul 26, 2022
- 4 min
The curious connection between hypermobility and neurodivergence
by Dr J Eccles MRCPsych MSc Ph, Patron of SEDSConnective Funded by the MRC, MQ Mental Health Research and Versus Arthritis, I led a team...
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jane green
- Jul 25, 2022
- 2 min
We're now a charity!
We are absolutely delighted to announce that we have been granted charitable status by the Charity Commission. This will open up many...
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jane green
- Jul 21, 2022
- 2 min
'Fluffy Supports'
BLOG POST - Greg Rix, 26, teacher from West Sussex and Trustee at www.SEDSconnective.org I sit here writing whilst my beloved is in an...
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