ARFID or MALS - It's not 'all in your head'
Median Arcuate Ligament Syndrome (MALS) – the exhausting fight to find out the rare cause of your pain when your doctors tell you it's...
top of page
Blog and Newsletters
Search
SEDSConnective
- Oct 5
- 2 min
The Investiture of Jane Green MBE at Windsor Castle by HRH Prince William 4th October 2023
Trailblazing Advocate and Founder of SEDSConnective, Jane Green, Awarded MBE at Windsor Castle Jane Green MBE FCCT comments: “My only...
161 views0 comments
SEDSConnective
- Aug 11
- 2 min
The Lying Down Work in Alexander Sessions (‘Constructive Rest’) - Part II
by Natalie Gibellini - Alexander Technique Teacher When I work with someone who is lying on the table, usually I put my hands on the back...
86 views0 comments
SEDSConnective
- Jul 12
- 2 min
Connective Tissue Disorders and Autism?
by Rosie Baruah 46 Consultant in Intensive Care Medicine, University of Edinburgh Explanations are important to me. I find reassurance...
422 views0 comments
jane green
- Jun 28
- 3 min
I am MORE than my history- Eating issues or not?
Having a history of any illness is hard, but when trying to advocate that your symptoms are not due to your history is even harder....
215 views0 comments
SEDSConnective
- Jun 26
- 1 min
SEDSConnective Charity Delivers 5th Year of Strong Advocacy for the Neurodivergent Community
Happy 5th Birthday to us! SEDSConnective are celebrating our demi-decade anniversary today (Monday 26 June 2023) for helping members of...
44 views0 comments
jane green
- May 31
- 4 min
I co-wrote co-occuring Physical Health Challenges in Neurodivergent CYP and this is why...
by Jane Green MBE MA Ed. Chair and Founder of SEDSConnective As a child, my education was poor. I moved internationally seven times...
188 views0 comments
jane green
- May 12
- 3 min
When that mast cells flare the ‘storm’ gathers pace
ODE TO A MAST CELL Cytokine storm rages, histamine release Multi biological reactions that never cease Swelling, blisters, itching,...
112 views0 comments
jane green
- Apr 27
- 2 min
'Those who most need health or social care tends to be the those who least receive it' J Tudor
by Jane Green MBE Imagine being disabled, chronically ill and perhaps even a carer for similar in your family network yet often not...
121 views0 comments
SEDSConnective
- Apr 18
- 2 min
Ever wondered what it's like as an Autistic Pain Researcher?
"Even though I am autistic myself, I learn so much through these interactions about the different ways autism, pain and even research...
167 views0 comments
SEDSConnective
- Mar 27
- 1 min
Lipoedema and the Immune System
New paper on how the immune system influences lipoedema A summary of “A distinct M2 macrophage infiltrate and transcriptomic profile...
76 views0 comments
SEDSConnective
- Mar 6
- 1 min
Rare or Rarely Believed? Jane's Story
Blog by Jane Green for Rare Diseases UK as part of Rare Disease Day 2023 Jane Green MBE, Chair and Founder of SEDSConnective a...
354 views0 comments
jane green
- Feb 15
- 2 min
Hypermobility in physiotherapy education
My name is Katie, I’m 25 years old from East Sussex. I am currently a third year physiotherapy BSc student at the University of...
215 views1 comment
joanna405
- Feb 13
- 1 min
Age warning- Time to talk about sex and intimate relations
We asked you to share the ups and downs, and ins and outs , of sex and intimate relations if you are one of us with...
556 views0 comments
jane green
- Feb 8
- 2 min
Co-Occurring Physical Health Challenges in Neurodivergent Children & Young People: A Topical Review
Click on hyperlink below to read the actual Paper. https://www.tandfonline.com/doi/full/10.1080/13575279.2022.2149471 This is an easy...
1,549 views0 comments
joanna405
- Feb 2
- 2 min
Getting Connected in Crawley
On Monday 30th January 2023 the SEDSConnective workshop/demonstration day took place in Crawley, welcoming the Worshipful Mayor of...
31 views0 comments
joanna405
- Jan 20
- 1 min
New research: Co-occurring health challenges for children and young people
The first publication on neurodivergence (Autism, ADHD, dyspraxia +) and hypermobilty conditions, such as JHS and EDS , in education...
104 views0 comments
jane green
- Dec 31, 2022
- 4 min
MBE - me ?
I am deeply honoured and humbled to receive an MBE for my voluntary services to neurodivergent people (autistic, dyspraxic, ADHD,...
237 views0 comments
SEDSConnective
- Dec 5, 2022
- 2 min
The Lying Down Work in Alexander Sessions (‘Constructive Rest’) Part I
During an Alexander Technique session, usually I offer the option to lie on my teaching table. Although it is not essential to...
136 views0 comments
SEDSConnective
- Dec 1, 2022
- 2 min
Making the Connections: A history of hypermobility research new study out! SEDSConnective webinar
SEDSConnective held an exciting webinar on 20th November 2022, where we heard from Dr Jessica Eccles, Clinical Senior Lecturer and our...
199 views0 comments
bottom of page