New research: Co-occurring health challenges for children and young people
The first publication on neurodivergence (Autism, ADHD, dyspraxia +) and hypermobilty conditions, such as JHS and EDS , in education...
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jane green
- Dec 31, 2022
- 4 min
MBE - me ?
I am deeply honoured and humbled to receive an MBE for my voluntary services to neurodivergent people (autistic, dyspraxic, ADHD,...
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SEDSConnective
- Dec 5, 2022
- 2 min
The Lying Down Work in Alexander Sessions (‘Constructive Rest’) Part I
During an Alexander Technique session, usually I offer the option to lie on my teaching table. Although it is not essential to...
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SEDSConnective
- Dec 1, 2022
- 2 min
Making the Connections: A history of hypermobility research new study out! SEDSConnective webinar
SEDSConnective held an exciting webinar on 20th November 2022, where we heard from Dr Jessica Eccles, Clinical Senior Lecturer and our...
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jane green
- Oct 28, 2022
- 3 min
Our Autumn Newsletter 2022 We are making a difference!
Welcome to our Autumn Newsletter! We are the only expert by experience and voluntary led charity for symptomatic hypermobility...
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jane green
- Oct 18, 2022
- 1 min
WorldMenopauseDay 18th October- RED ANTS - I was told I would be put on Multiple Sclerosis pathway!
by Jane Green I am used to disbelief and rolling eyes but when I asked for help from the doctor that I was suffering from red ants...
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SEDSConnective
- Oct 3, 2022
- 2 min
New Pain advisers for SEDSConnective
We 're delighted to introduce our 2 new pain advisers Dr David Moore, a Reader in Pain Psychology, and Bethany Donaghy a PhD Student. Dr...
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jane green
- Sep 23, 2022
- 2 min
TAPING : useful or useless ?
by Jane Green MA Ed. It's been around for about 30 years + very useful for symptomatic hypermobile joints, weakened muscles, ligaments....
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SEDSConnective
- Aug 31, 2022
- 3 min
"It all started with a lamppost..."
Member Blog: Diane - aged 58 Carer | Teacher/outreach teacher consultant -MA (ASC) I was the kid that attended hospital a lot. Activity...
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SEDSConnective
- Aug 26, 2022
- 2 min
It’s spider mating season. Can a spider phobia ruin your health?
Jane Green would have answered “yes” to that question a year ago. But in September 2021, she decided to try and cure her fear of spiders...
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jane green
- Aug 18, 2022
- 2 min
Did you know people with symptomatic hypermobility can often struggle with food sensitivity?
by Kelly Harris, BA dipNT rCNHC mBANT Registered Nutritionist People with symptomatic hypermobility, #SH #EDS or #HSD can often struggle...
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jane green
- Aug 1, 2022
- 2 min
Why you need to know about EDS HSD (JHS) and symptomatic hypermobility in TES by Jane Green MA Ed.
https://www.tes.com/magazine/archive/why-you-need-know-about-eds-hsd-and-hypermobility The question is, how much longer do we have to...
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Dr Jessica Eccles
- Jul 26, 2022
- 4 min
The curious connection between hypermobility and neurodivergence
by Dr J Eccles MRCPsych MSc Ph, Patron of SEDSConnective Funded by the MRC, MQ Mental Health Research and Versus Arthritis, I led a team...
1,062 views1 comment
jane green
- Jul 25, 2022
- 2 min
We're now a charity!
We are absolutely delighted to announce that we have been granted charitable status by the Charity Commission. This will open up many...
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jane green
- Jul 21, 2022
- 2 min
'Fluffy Supports'
BLOG POST - Greg Rix, 26, teacher from West Sussex and Trustee at www.SEDSconnective.org I sit here writing whilst my beloved is in an...
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jane green
- Jul 12, 2022
- 2 min
The Power and Potential of Peer support
By Sue Freeman, 57 from London A rollercoaster ride: that’s how I would describe my physical and mental health since my mid 40s. Although...
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jane green
- Jul 1, 2022
- 5 min
STORY TIME : My interoception sense of pain and past issues
Jane Green MA Ed. What happened? July 1st 2019, I went for a little walk. My left foot sunk into a soft dip in the grass verge which...
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jane green
- Jun 13, 2022
- 2 min
Trying to arrange care as a young person with complex needs + hEDS
By Grace Thompson, 19 near Brighton in Sussex It is normal to want independence from your parents as you grow up, and it is not always...
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jane green
- May 27, 2022
- 7 min
Told I was dim, weird, often absent from school- reasons to create the first EDS JHS schooltoolkit
Today is the anniversary of the first ever school toolkit for Ehlers-Danlos Syndromes, Joint Hypermobility syndromes and symptomatic...
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jane green
- May 23, 2022
- 1 min
Insoles and the Hypermobile Foot (Hypermobility HM Foot)
Advice Piece written by SEDSConnective Advisor Josh Oguntade People often do not know what happens when or why you need an insole. Very...
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