top of page
Blog
Common searches
Search

SEDSConnective
5 days ago1 min read
New Study : Hypermobility and emotions are linked to the brain
'People with hypermobility who also feel very anxious had busier brain activity ...'
1620


SEDSConnective
Jan 313 min read
Liberation Art Gallery: a space for creativity and wellbeing
Welcome to Liberation Art Gallery in connection with SEDSConnective At Liberation Art Gallery, we believe art should be for everyone, not...
352

SEDSConnective
Jan 312 min read
Red, White and Blue are my digits you know? February is Raynaud’s Awareness month
Do your fingers get frozen quickly? Do you find you have to warn people before they offer to shake your hands. Are your feet like blocks...
1630

Jane Green MBE
Jan 101 min read
SNAP CRACKLE POP!
Have you ever noticed those cracking, snapping, and popping sounds in your joints? Yes? That's what we call crepitus. It can happen...
930


SEDSConnective
Nov 29, 20243 min read
My Developmental Coordination Disorder (dyspraxia)
“Around 3-5% of adults in the UK are thought to have some kind of dyspraxia or DCD (Developmental Coordination Disorder)”
1900

Jane Green MBE
Nov 24, 20242 min read
Oh my GERD or GORD!
GORD—or, GERD—depending on your location, which stands for gastro-oesophageal reflux disease. Whatever you call it, it’s when acid and...
1720

Jane Green MBE
Oct 31, 20242 min read
Health challenges with hypermobility, Autism ADHD x 4
As a family we don’t fit neatly into boxes. Our bodies and our brains are different.
3560

Jane Green MBE
Oct 28, 20242 min read
POTS and hypovolemia
Dysautonomia is dysfunction of the autonomic nervous system, which controls essential functions like heart rate, blood pressure,...
1960

Jane Green MBE
Oct 12, 20243 min read
Autism, Anxiety and interoception
I was often told 'it was all in my head'
6520

Jane Green MBE
Oct 9, 20241 min read
What is Dysautonomia?
It is a malfunction of the Autonomic Nervous System - there are 3 systems ...
1320


SEDSConnective
Sep 29, 20243 min read
How do you know if a neurodivergent child is 'MASKING' pain (hypermobility)
I am asking for psychological support for him is he is so traumatised by it all.
1230

SEDSConnective
Sep 25, 20242 min read
What is Inclusion week? Why does it matter ?
We ask to be heard, included and coproduce initiatives in all areas with equality and equity.
220

SEDSConnective
Sep 22, 20242 min read
Rejection Sensory Dysphoria ?
The chances I had to have a relationship have been few and far between and because I push people away.
2270

Jane Green MBE
Sep 12, 20241 min read
Designing for All : Embracing Aural Diversity in Our Spaces”
How many of you find restaurants overwhelming or struggle to hear in crowded spaces? How many times have sound issues or barriers...
340

SEDSConnective
Jul 31, 20242 min read
What is Gastroparesis?
For the worst days, foods that will move with gravity, like shakes or liquids are generally going to be the best option.
4070
Jane Green MBE
May 31, 20243 min read
Masking my Pain with alcohol
by Gale (43) from Gloucestershire TRIGGER WARNING: Alcohol Addiction. I believe I am neurodivergent. In reading about hypermobility...
1710

Jane Green MBE
May 29, 20242 min read
Alphabet Soup: A Look at hypermobility acronyms and terminology
Ever heard of "alphabet soup"? It’s a term that comes up a lot when talking about confusing mixtures of abbreviations and acronyms....
1710

Jane Green MBE
May 26, 20242 min read
Why does it matter? Traumatisation of patients by some clinicians
Warning: mentions suicidal / trauma In case you missed this paper (below) it is about traumatisation of people with hypermobility...
3230

Jane Green MBE
May 21, 20241 min read
Our Chair on behalf of you was delighted to talk to Westminster staff about neurodivergence and hypermobilty
Today our Chair Jane Green MBE was speaking on our behalf on neurodivergence and hypermobility at Westminster, London , England. Tomorrow i
660


Jane Green MBE
Apr 30, 20242 min read
"Walking the path of thorns" along with hypermobility EDS and dyslexia
by Solomon Ballin, Age 27 I was diagnosed with dyslexia at 12 years old, it is said that I could also have other neurodivergence...
1820


Jane Green MBE
Apr 28, 20242 min read
Autism is late diagnosis over 50
From the article originally published by Reach in GetSurreyNews a few years ago : by Jane Green '"I wasn't masking at all, that's what I...
870


Jane Green MBE
Apr 20, 20241 min read
Member in the news- Severe migraines and chronic illness
Natasha Green a member of SEDSConnective talks about severe migraines and how chronic illness has been a huge part of her life. She...
950

Jane Green MBE
Apr 18, 20243 min read
Irritable Bowel Syndrome ? (IBS) or....SIBO?
This information sheds light on the complexities of managing IBS in individuals with symptomatic hypermobility and underscores the...
2460
bottom of page