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I am MORE than my history- Eating issues or not?
Having a history of any illness is hard, but when trying to advocate that your symptoms are not due to your history is even harder....
Jane Green MBE
Jun 28, 20233 min read
SEDSConnective Charity Delivers 5th Year of Strong Advocacy for the Neurodivergent Community
Happy 5th Birthday to us! SEDSConnective are celebrating our demi-decade anniversary today (Monday 26 June 2023) for helping members of...
SEDSConnective
Jun 26, 20231 min read
I co-wrote co-occuring Physical Health Challenges in Neurodivergent CYP and this is why...
by Jane Green MBE MA Ed. Chair and Founder of SEDSConnective As a child, my education was poor. I moved internationally seven times ...
Jane Green MBE
May 31, 20234 min read
What is MCAS? "When mast cells flare the ‘storm’ gathers pace"
These are our ‘allergy’ cells, and the first responders to
Jane Green MBE
May 12, 20233 min read
'Those who most need health or social care tends to be the those who least receive it' J Tudor
by Jane Green MBE Imagine being disabled, chronically ill and perhaps even a carer for similar in your family network yet often not...
Jane Green MBE
Apr 27, 20232 min read
Ever wondered what it's like as an Autistic Pain Researcher?
"Even though I am autistic myself, I learn so much through these interactions about the different ways autism, pain and even research...
SEDSConnective
Apr 18, 20232 min read
Rare or Rarely Believed? Jane's Story
Blog by Jane Green for Rare Diseases UK as part of Rare Disease Day 2023 Jane Green MBE, Chair and Founder of SEDSConnective a...
SEDSConnective
Mar 6, 20231 min read
Hypermobility in physiotherapy education
My name is Katie, I’m 25 years old from East Sussex. I am currently a third year physiotherapy BSc student at the University of...
Jane Green MBE
Feb 15, 20232 min read
Age warning- Time to talk about sex and intimate relations
We asked you to share the ups and downs, and ins and outs , of sex and intimate relations if you are one of us with...
joanna405
Feb 13, 20231 min read
Co-Occurring Physical Health Challenges in Neurodivergent Children & Young People: A Topical Review
Click on hyperlink below to read the actual Paper. https://www.tandfonline.com/doi/full/10.1080/13575279.2022.2149471 This is an easy...
Jane Green MBE
Feb 8, 20232 min read
Getting Connected in Crawley
On Monday 30th January 2023 the SEDSConnective workshop/demonstration day took place in Crawley, welcoming the Worshipful Mayor of...
joanna405
Feb 2, 20232 min read
New research: Co-occurring health challenges for children and young people
The first publication on neurodivergence (Autism, ADHD, dyspraxia +) and hypermobilty conditions, such as JHS and EDS , in education...
joanna405
Jan 20, 20231 min read
MBE - me ?
I am deeply honoured and humbled to receive an MBE for my voluntary services to neurodivergent people (autistic, dyspraxic, ADHD,...
Jane Green MBE
Dec 31, 20224 min read
The Lying Down Work in Alexander Sessions (‘Constructive Rest’) Part I
During an Alexander Technique session, usually I offer the option to lie on my teaching table. Although it is not essential to...
SEDSConnective
Dec 5, 20222 min read
Making the Connections: A history of hypermobility research new study out! SEDSConnective webinar
SEDSConnective held an exciting webinar on 20th November 2022, where we heard from Dr Jessica Eccles, Clinical Senior Lecturer and our...
SEDSConnective
Dec 1, 20222 min read
Our Autumn Newsletter 2022 We are making a difference!
Welcome to our Autumn Newsletter! We are the only expert by experience and voluntary led charity for symptomatic hypermobility...
Jane Green MBE
Oct 28, 20223 min read
WorldMenopauseDay 18th October- The doctors said I was normal range- but my body had had enough: Red ants were the final straw
The doctors said I was normal range- but my body had had enough
Jane Green MBE
Oct 18, 20222 min read
New Pain advisers for SEDSConnective
We 're delighted to introduce our 2 new pain advisers Dr David Moore, a Reader in Pain Psychology, and Bethany Donaghy a PhD Student. Dr...
SEDSConnective
Oct 3, 20222 min read
TAPING : useful or useless ?
by Jane Green MA Ed. It's been around for about 30 years + very useful for symptomatic hypermobile joints, weakened muscles, ligaments....
Jane Green MBE
Sep 23, 20222 min read
"It all started with a lamppost..."
Member Blog: Diane - aged 58 Carer | Teacher/outreach teacher consultant -MA (ASC) I was the kid that attended hospital a lot. Activity...
SEDSConnective
Aug 31, 20223 min read
It’s spider mating season. Can a spider phobia ruin your health?
Jane Green would have answered “yes” to that question a year ago. But in September 2021, she decided to try and cure her fear of spiders...
SEDSConnective
Aug 26, 20222 min read
Did you know people with symptomatic hypermobility can often struggle with food sensitivity?
by Kelly Harris, BA dipNT rCNHC mBANT Registered Nutritionist People with symptomatic hypermobility, #SH #EDS or #HSD can often struggle...
Jane Green MBE
Aug 18, 20222 min read
Why you need to know about EDS HSD (JHS) and symptomatic hypermobility in TES by Jane Green MA Ed.
https://www.tes.com/magazine/archive/why-you-need-know-about-eds-hsd-and-hypermobility The question is, how much longer do we have to...
Jane Green MBE
Aug 1, 20222 min read
The curious connection between hypermobility and neurodivergence
by Dr J Eccles MRCPsych MSc Ph, Patron of SEDSConnective Funded by the MRC, MQ Mental Health Research and Versus Arthritis, I led a team...
Dr Jessica Eccles
Jul 26, 20225 min read
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