The challenge of sitting...
BLOG PIECE by Natalie Gibellini (Sussex Ehlers-Danlos and Hypermobility Disorders (SEDS) Alexander Technique Practitioner) "My...
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jane green
- Jan 2, 2022
- 1 min
Autism Peer Support - What is still needed?
Autism Peer Support Until the 15th January you can have your say on what core capabilities are needed for autism peer support workers. ...
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jane green
- Dec 24, 2021
- 1 min
Merry Christmas
You’re very dear to us and we are grateful for all your support May you have a restful festive period, from all of us to all of you, if...
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jane green
- Dec 17, 2021
- 1 min
Autism Peer Support
Autism Peer Support Until the 15th January to have your say on what core capabilities are needed for autism peer support workers. The...
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jane green
- Nov 11, 2021
- 3 min
Social Enterprise Day!
Written by Becky Orpin Sussex Ehlers Danlos Syndromes and Hypermobility Disorders CIC - Founded in 2018 by Jane Green. Initially set up...
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jane green
- Nov 5, 2021
- 1 min
Crawley's Nominated Charity for EDS, HSD and Symtomatic Hypermobility!
Morgan Flack, Acting Mayor for Crawley, recently announced that SEDS are her nominated charity for Ehlers-Danlos Syndromes,...
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jane green
- Sep 20, 2021
- 1 min
EVENT: nasen Live 2021 - Inclusion beyond COVID
We are excited to announce that nasen Live will be returning to the Vox Conference Centre in Birmingham on the 24th September 2021 nasen...
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jane green
- Sep 20, 2021
- 1 min
EVENT: Autism Explained Online Summit - Tuesday 21st September - 9am
Jane Green Edsau is looking forward to being part of this year’s Autism Explained and will be speaking about Hypermobility (EDS / JHS),...
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jane green
- Sep 17, 2021
- 2 min
Pain & The Alexander Technique
BLOG PIECE by Natalie Gibellini As far back as I can remember, I recall body pains. After some of my injuries the pain didn’t resolve...
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jane green
- Aug 20, 2021
- 1 min
What schools need to know to support learners with hypermobility and Ehlers-Danlos syndrome
BLOG PIECE - Jane Green Jane recently wrote a blog piece for Special Needs Jungle about the National UK SchoolToolkit for EDS and JHS...
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jane green
- Aug 20, 2021
- 2 min
What is the Alexander Technique?
BLOG POST by Natalie Gibellini Many people I speak to don’t know what the Alexander Technique is! First it is important to say that like...
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jane green
- Aug 17, 2021
- 3 min
Aerial acrobatics with Hypermobile Ehlers-Danlos Syndromes
by Anna Hayes As a kid I was always really flexible but also chunky. I followed my sisters footsteps in gymnastics, but I wasn’t very...
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jane green
- Jul 16, 2021
- 2 min
Applying the Alexander Technique with Hypermobility Issues
I'm Natalie, 39 from Seaford. I have hypermobility, without diagnosis. I spent many years trying unsuccessfully to address debilitating...
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jane green
- Jun 30, 2021
- 2 min
What helps you?
Member Blog Post By LAUREN DALY Whether you struggle with Ehlers-Danlos Syndrome (EDS), Long Covid, are Neurodivergent or have any other...
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jane green
- May 28, 2021
- 2 min
UK School Toolkit for EDS and JHS Launch
Yesterday (27th May 2021) saw the launch of the FREE UK School Toolkit for EDS & JHS developed by The Ehlers-Danlos Support UK in...
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jane green
- May 13, 2021
- 3 min
"I hadn't even heard of EDS..!"
BLOG POST by Becky Orpin It was just over a year ago when Jane contacted me via a local COVID-19 support group, asking if I would be...
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jane green
- May 11, 2021
- 1 min
"I’m Invisibly Disabled & The Return Of ‘Normal’ Life Terrifies Me"
PRESS INTERVIEW Jane Green was recently interviewed by Refinery 29 on living with a hidden disability post pandemic. "There needs to be...
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jane green
- May 6, 2021
- 1 min
How retailers can improve online accessibility and why it matters...
PRESS INTERVIEW Retail Insight Networks talks with Jane Green and retail and accessibility experts to find out how retailers can improve...
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jane green
- May 3, 2021
- 1 min
‘I’d dislocate my shoulder putting my coat on, but I was told I was a hypochondriac’ - Jane Green
PRESS INTERVIEW Jane Green was recently interviewed by iNews as part of Ehlers-Danlos Syndromes Awareness Month in May 2021. 'Once...
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jane green
- Apr 16, 2021
- 1 min
Freezing from the inside out!
Core body temperature is usually around 36-38°c. Medication, weather can affect body temperature, as can other hormones, allergies or...
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