POTS and hypovolemia
Dysautonomia is dysfunction of the autonomic nervous system, which controls essential functions like heart rate, blood pressure,...
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Jane Green MBE
Oct 123 min read
Autism, Anxiety and interoception
I was often told 'it was all in my head'
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SEDSConnective
Jul 312 min read
What is Gastroparesis?
For the worst days, foods that will move with gravity, like shakes or liquids are generally going to be the best option.
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Jane Green MBE
May 262 min read
Why does it matter? Traumatisation of patients by some clinicians
Warning: mentions suicidal / trauma In case you missed this paper (below) it is about traumatisation of people with hypermobility...
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Jane Green MBE
May 211 min read
Our Chair on behalf of you was delighted to talk to Westminster staff about neurodivergence and hypermobilty
Today our Chair Jane Green MBE was speaking on our behalf on neurodivergence and hypermobility at Westminster, London , England. Tomorrow i
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Jane Green MBE
Apr 201 min read
Member in the news- Severe migraines and chronic illness
Natasha Green a member of SEDSConnective talks about severe migraines and how chronic illness has been a huge part of her life. She...
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Jane Green MBE
Jan 302 min read
Trying to rekindle your passion for dance!
SEDSConnective member and volunteer - Ayishah Bushara, Age 30, Sussex Let's talk about losing a piece of you, a passion, a love! Mine was...
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Jane Green MBE
Dec 29, 20232 min read
Crossing Borders, Connecting Worlds: My Journey with Neurodivergence and Connective Tissue Disorders
Dr Kana Grace, PhD Neurodivergent neurodivergence advocate and researcher Okinawa, Japan @kanabaletti https://linktr.ee/kanagrace...
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Jane Green MBE
Oct 31, 20234 min read
ARFID or MALS - It's not 'all in your head'
Median Arcuate Ligament Syndrome (MALS) – the exhausting fight to find out the rare cause of your pain when your doctors tell you it's...
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Jane Green MBE
Jun 28, 20233 min read
I am MORE than my history- Eating issues or not?
Having a history of any illness is hard, but when trying to advocate that your symptoms are not due to your history is even harder....
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Jane Green MBE
May 12, 20233 min read
What is MCAS? "When mast cells flare the ‘storm’ gathers pace"
These are our ‘allergy’ cells, and the first responders to
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Jane Green MBE
Oct 18, 20222 min read
WorldMenopauseDay 18th October- The doctors said I was normal range- but my body had had enough: Red ants were the final straw
The doctors said I was normal range- but my body had had enough
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Jane Green MBE
Jul 1, 20225 min read
Accidents happen in slow time- How being labelled a hypochondriac affects all your life. I went for a little walk...
Jane Green MA Ed. What happened? July 1st 2019, I went for a little walk. My left foot sunk into a soft dip in the grass verge which...
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SEDSConnective
May 27, 20227 min read
My reasons to create the school toolkit for hypermobiity.
I did this voluntarily as I firmly believed children and young people, education staff needed this now and for future generations
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