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August is Gastroparesis month

For the worst days, foods that will move with gravity, like shakes or liquids are generally going to be the best option.

Why does it matter? Traumatisation of patients by some clinicians

Warning: mentions suicidal / trauma In case you missed this paper (below) it is about traumatisation of people with hypermobility...

Our Chair on behalf of you was delighted to talk to Westminster staff about neurodivergence and hypermobilty

Today our Chair Jane Green MBE was speaking on our behalf on neurodivergence and hypermobility at Westminster, London , England. Tomorrow i

Member in the news- Severe migraines and chronic illness

Natasha Green a member of SEDSConnective talks about severe migraines and how chronic illness has been a huge part of her life. She...

Trying to rekindle your passion for dance!

SEDSConnective member and volunteer - Ayishah Bushara, Age 30, Sussex Let's talk about losing a piece of you, a passion, a love! Mine was...

Crossing Borders, Connecting Worlds: My Journey with Neurodivergence and Connective Tissue Disorders

Dr Kana Grace, PhD Neurodivergent neurodivergence advocate and researcher Okinawa, Japan @kanabaletti https://linktr.ee/kanagrace...

ARFID or MALS - It's not 'all in your head'

Median Arcuate Ligament Syndrome (MALS) – the exhausting fight to find out the rare cause of your pain when your doctors tell you it's...

I am MORE than my history- Eating issues or not?

Having a history of any illness is hard, but when trying to advocate that your symptoms are not due to your history is even harder....

Accidents happen in slow time- How being labelled a hypochondriac affects all your life. I went for a little walk...

Jane Green MA Ed. What happened? July 1st 2019, I went for a little walk. My left foot sunk into a soft dip in the grass verge which...