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An In-Depth Analysis of the 5th SEND Report: Ensuring Complex Needs Are Not Overlooked
The SEND system is under strain, and children with complex needs are being left behind. We break down what the 5th Report says, why SEDSConnective submitted evidence, and how our community’s experiences can help drive real change.
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Nov 17, 20255 min read


Vitamins/supplements and Depression
Foods with magnesium In this large study on depression , researchers looked at the impacts of micronutrients on genetics and genetics on...
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Aug 31, 20252 min read


Connective Bodies/Brains - Hypermobility EDS,JH and Neurodivergence (Autism ADHD +)
Emerging research is revealing strong links between neurodivergent conditions such as Autism, ADHD, Dyspraxia, Tourette's dyslexia and physical traits like joint hypermobility, Ehlers–Danlos syndromes and other connective tissue differences.
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Aug 9, 20251 min read


Understanding the Connection Between Dysphagia, EDS, and Hypermobility Disorders
Dysphagia is where you have problems swallowing.
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Aug 3, 20252 min read


Oh my GERD or GORD!
It’s one of the more common digestive disorders seen with symptomatic hypermobility GERD GORD
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Aug 3, 20252 min read


What is the Beighton Scale / Score
Children are naturally more bendy than adults
Women tend to be more flexible than men
Your usually get much stiffer as you age
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Jul 21, 20252 min read
Ehlers-Danlos syndromes links to Autism and ADHD
EDS Ehlers-Danlos Autism and ADHD plus other conditions mental health
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Jul 14, 20251 min read


It’s Not Just in Your Head...hidden stuggles of neurodivegent health (hypermobilty)
'groundbreaking era of neuroscience'
'masking pain invalidates your self worth'
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Jun 7, 20252 min read


The School Toolkit for EDS / JHS: the journey behind it and beyond...
I did this voluntarily as I firmly believed children and young people, education staff needed this now and for future generations
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May 25, 20258 min read


RSD: The Invisible Pain of Rejection Sensitive Dysphoria
Do your emotions hit like a tidal wave? Have you ever felt an overwhelming emotional response so intense that it physically hurts? A...
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Feb 16, 20252 min read


New Study : Hypermobility and emotions are linked to the brain
'People with hypermobility who also feel very anxious had busier brain activity ...'
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Feb 8, 20251 min read


POTS and hypovolemia
Dysautonomia is dysfunction of the autonomic nervous system, which controls essential functions like heart rate, blood pressure,...
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Oct 28, 20242 min read


Autism, Anxiety, mcas and interoception
I was often told 'it was all in my head'
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Oct 12, 20243 min read


What is Gastroparesis?
For the worst days, foods that will move with gravity, like shakes or liquids are generally going to be the best option.
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Jul 31, 20242 min read


Why does it matter? Traumatisation of patients by some clinicians
Warning: mentions suicidal / trauma In case you missed this paper (below) it is about traumatisation of people with hypermobility...
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May 26, 20242 min read


Our Chair on behalf of you was delighted to talk to Westminster staff about neurodivergence and hypermobilty
Today our Chair Jane Green MBE was speaking on our behalf on neurodivergence and hypermobility at Westminster, London , England. Tomorrow i
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May 21, 20241 min read


Member in the news- Severe migraines and chronic illness
Natasha Green a member of SEDSConnective talks about severe migraines and how chronic illness has been a huge part of her life. She...
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Apr 20, 20241 min read


Trying to rekindle your passion for dance!
SEDSConnective member and volunteer - Ayishah Bushara, Age 30, Sussex Let's talk about losing a piece of you, a passion, a love! Mine...
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Jan 30, 20242 min read


Crossing Borders, Connecting Worlds: My Journey with Neurodivergence and Connective Tissue Disorders
Dr Kana Grace, PhD Neurodivergent neurodivergence advocate and researcher Okinawa, Japan @kanabaletti https://linktr.ee/kanagrace...
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Dec 29, 20232 min read


ARFID or MALS - It's not 'all in your head'
Median Arcuate Ligament Syndrome (MALS) – the exhausting fight to find out the rare cause of your pain when your doctors tell you it's...
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Oct 31, 20234 min read
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