Education
Education is a vital part of our work, creating schools aware and engaged in hypermobile support
Understanding Hypermobility
SEDSConnective Chair & Founder, Jane Green talks about hypermobility including some of the common signs and implications of the condition.
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Although diagnoses' of Ehlers-Danlos syndromes (EDS) and the closely related Hypermobility Spectrum Disorders (HSD) are increasing amongst children and young people, little is known about the impact this has on their attainment and attendance in school.
Making the Connections -
A journey in Hypermobility Research.
Exclusive Webinar with Dr J Eccles,
Jane Green MBE, SEDSConnective Team & Dr L Quadt
Our exclusive webinar from November 2022 with SEDSConnective Patron & specialist,
Dr J Eccles.
Dr Eccles explains the research and the connections between the conditions/symptoms many of our members have but not realised the brain/body connection
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Inside Health: BBC Radio 4
What do you think bendy joints has to do with the way the brain works? Well you may be in for surprise. Scientists have found a connection with autism, attention deficit and Tourettes. So what does this tell us about how our brain and body work?
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BBC Radio 4 : Inside Health
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Wed 20 Jul 2022
School toolkit launches to transform understanding of hypermobility syndromes in children
The free online resource, funded by The D’Oyly Carte Charitable Trust, The Peter Harrison Foundation and The Ehlers-Danlos Support UK, has been developed in collaboration with the Hypermobility Syndromes Association to plug the urgent need for education of staff in mainstream primary and secondary schools to give children a better chance of living normal lives.
educatemagazine.com
Raising awareness of pupils with Ehlers-Danlos syndromes / Hypermobility Spectrum Disorders.
Increasingly Ehlers-Danlos syndromes (EDS) and the closely related Hypermobility Spectrum Disorders (HSD) are being diagnosed in some pupils but very little is known about the impact this has on the pupil, parents/carers and their attainment and attendance in school.
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edpsy.org.uk
15 July 2020
What schools need to know to support learners with hypermobility and Ehlers-Danlos syndrome
Ehlers Danlos syndrome comes in many guises and as such, it often takes a long time for people with this multi-symptomatic condition to be diagnosed. I should know: I was 46 when the random pains, dizziness and fatigue I'd always had, blew up into enduring disability. My two (adult) children also have it to varying degrees and, as an advisor for the Ehlers Danlos Society, my knowledge of the condition really helped when it came to helping their school understand too.
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Jane Green
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specialneedsjungle.com
School toolkit launches to transform understanding of hypermobility syndromes in children
Jane Green MA Ed, a professional educationalist and adviser on hypermobility syndromes and the EDS UK content lead for the School Toolkit, says: “The School Toolkit for EDS and JHS is long awaited and overdue. Schools have commonly not understood EDS and JHS in children and young people. Often children and young people are not believed to be ill, in pain or injured as it seems to come out of nowhere.
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senmagazine.co.uk
Spotlight on Women’s Health and Neurodivergence issues
As Founder and Chair of SEDSConnective, it was important event for me to meet the Parliamentary Under-Secretary of State for Mental Health and Women's Health Strategy, Maria Caulfield.
SEDSConnective is a voluntary, user-led charity that voices the community opinions of neurodivergent (Autism, ADHD, Dyspraxia, Tourette’s +) and symptomatic hypermobility (EDS HSD JH).
A Topical review of Co-occurring physical health challenges in neurodivergent children and young people: A topical review and recommendations
Peer reviewed Paper in the Journal of Child Care in Practice on neurodivergence (Autism, ADHD, dyspraxia , Tourettes+) and co-occurring health conditions such as Ehlers-Danlos Syndromes,pain , gastrointestinal issues is here for education health, care and allied professionals. It is open golden access and is a fantastic collaboration by Bethany Donaghy, Dr David Moore and Jane Green MBE.
18 January 2023
Told I was dim, weird, often absent from school- reasons to create the first EDS JHS schooltoolkit
Today is the anniversary of the first ever school toolkit for Ehlers-Danlos Syndromes, Joint Hypermobility syndromes and symptomatic hypermobility for primary and secondary school children and young people.
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SEDSConnective.org
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27th May 2022
