We want people with Symptomatic Hypermobility and Neurodivergent identified groups, to have equal opportunities for body and brain health in education, health arenas, social care, employment and transport accessibility.
SEDSConnective improves and actively supports the lives of people with Symptomatic Hypermobility, EDS (Ehlers-Danlos Syndromes), Hypermobility Spectrum Disorders (HSD) , JHS and Neurodivergence (primarily Autism, ADHD, Dyspraxia, Tourette's syndrome) and associated conditions.
Also for families, carers in health, education, social care, employment, and transport accessibility.
What we do:
We are a symptomatic hypermobility neurodivergent expert-by-experience led, voluntary charity. We actively support some members with specialised therapies, activities and employment opportunities. As well as provide means for peer to peer communication and support. We actively advocate awareness and understanding as well as engaging in research globally
How we do this:
We do this by raising local funds locally for local members and coproducing activities with our members where possible.
By connecting to professionals, allied professionals, groups and other charities speaking at conferences, publications and webinars. As well as holding online and face to face meetings (See our Events).
Why we do this:
This is needed as we have most of the protected characteristics yet have been physically and systemically neglected. We are vulnerable and many unable to work or have financial independence as well as very poor health, education in some cases, social mobility. We know both the mental and physical health as well as promoting wellbeing for our members.