Blog

The SEND system is under strain, and children with complex needs are being left behind. We break down what the 5th Report says, why SEDSConnective submitted evidence, and how our community’s experiences can help drive real change.

Autism policy must recognise the body-brain connection. Physical pain, fatigue, and hypermobility in autistic people are often dismissed as behaviour, causing harm and misdiagnosis. Learn why integrated health policy is critical."

People with EXTREME hypermobility appear to be at particularly high risk for long COVID

A groundbreaking international survey sheds light on the hidden struggles of thousands living with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders

'groundbreaking era of neuroscience' 'masking pain invalidates your self worth'

I did this voluntarily as I firmly believed children and young people, education staff needed this now and for future generations

'People with hypermobility who also feel very anxious had busier brain activity ...'

Dysautonomia is dysfunction of the autonomic nervous system, which controls essential functions like heart rate, blood pressure,...

I was often told 'it was all in my head'

For the worst days, foods that will move with gravity, like shakes or liquids are generally going to be the best option.

These are our ‘allergy’ cells, and the first responders to

The doctors said I was normal range- but my body had had enough

We are absolutely delighted to announce that we have been granted charitable status by the Charity Commission. This will open up many...