About Us
Our
Story
Get to Know Us
SEDSConnective was founded by Jane Green, who was inspired to create this charity after years of struggling with mistrust surrounding her conditions. As someone who is disabled and neurodivergent, Jane also cares for her eldest child, who shares similar challenges. After facing a late diagnosis, she encountered difficulties in her social and professional life and struggled to maintain financial stability. Jane believed there must be others like her, those with symptomatic hypermobility and neurodivergence.
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In 2018, Jane launched SEDSConnective in Sussex, UK. She started as a voluntary charity without funding or connections, driven solely by her passion to make a difference and improve outcomes for those in need.
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Today, we are a global charity with thousands of members worldwide. We remain committed to Jane's original vision, fostering a sense of community where individuals support one another. Whenever possible, we also collaborate with other charities and allied professionals to enhance our impact.
Jane Green MBE
Chair/Founder of SEDSConnective had her investiture, MBE in 2023 for her services to neurodivergent people with related Joint Hypermobility and Ehlers-Danlos syndromes in 2023. She was a professional Assistant Headteacher, MA Ed. national lead educationalist in neurodivergence before medically retiring. She is a global presenter, published author and parent/carer. Currently UK representative for EFNA CAB.
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Our
Founder
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Our
Patron
Dr Jessica Eccles
Dr Jessica Eccles is a Reader in Brain-Body Medicine at the University of Sussex, specialising in brain-body interactions, joint hypermobility, and neurodevelopmental conditions.
She holds multiple qualifications and leadership roles, including Co-Director of the HRP Health and Care Research Training Hub and Chair of the Royal College of Psychiatrists' Neurodevelopmental Psychiatry Special Interest Group.
Dr. Zachary Spiritos
MD, MPH, is a neurogastroenterologist who specializes in treating patients with complex and chronic conditions, including disorders of the brain-gut interaction (DBGI), postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), Ehlers-Danlos syndrome (EDS), and gastrointestinal dysmotility.
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He earned both his medical degree and Master of Public Health (MPH) from the University of North Carolina at Chapel Hill, where he developed a passion for addressing the systemic challenges faced by patients with underrecognized illnesses.
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He takes a whole-person approach to care, combining the best of conventional medicine with targeted interventions aimed at regulating the nervous system, improving sleep and movement patterns, addressing nutritional imbalances, and managing stress physiology.
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Practice website:
Our
Patron
Our Trustees
Kelly Harris
Andrea Sanchez
Katy Brizell
Stephanie Lucas
Sonal Bisht
Jane Green
Duugii
(Vice Treasurer)
Our Advisors
Cheryl Harris
Dietitian
Bonnie Southgate
MSK adviser Rehab specialist
Natalie Gibellini
​Alexander Technique Teacher
Dr David Moore
Pain researcher
Jane Green MBE
Educationalist
Dr Alan Hakim
Rheumatologist
Dr Kai Rabenstein, MD
Anaesthesia Adviser
Lucy Stafford
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Michael Dare
​Consultant Physiotherapist
Areeba Qureshi
First Contact/MSK
Emma Greaves
School Nurse
Professor lan C Chikanza
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