Get to Know Us

SEDSConnective was founded by Jane Green, who was inspired to create this charity after years of struggling with mistrust surrounding her conditions. As someone who is disabled and neurodivergent, Jane also cares for her eldest child, who shares similar challenges. After facing a late diagnosis, she encountered difficulties in her social and professional life and struggled to maintain financial stability. Jane believed there must be others like her—those with symptomatic hypermobility and neurodivergence.

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In 2018, Jane launched SEDSConnective in Sussex, UK. She started as a voluntary charity without funding or connections, driven solely by her passion to make a difference and improve outcomes for those in need.

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Today, we are a global charity with thousands of members worldwide. We remain committed to Jane's original vision, fostering a sense of community where individuals support one another. Whenever possible, we also collaborate with other charities and allied professionals to enhance our impact.