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We're now a charity!


We are absolutely delighted to announce that we have been granted charitable status by the Charity Commission.

This will open up many exciting opportunities for SEDSConnective and will allow us the opportunity to support more people with Symptomatic Hypermobility, Ehlers-Danlos, Neurodivergence, and other Syndromes in Sussex and beyond.

Our voluntary team have been extremely busy behind the scenes to make this happen, and we have big plans for the future and now, being registered as an official charity helps to bring these plans closer to reality. What do you need to do now? As we transfer over to a more streamlined site, as well as a more streamlined name (SEDSConnective) you will need to sign up as a member of the site in order to apply for funding if you are eligible, or subscribe to our blog for your newsletters!


Jane Green Chair and Founder announcement:


“Thank you to everyone who has been involved in this process from general members, steering group to Board, and our specialist advisers– we know it’s been lengthy and time consuming, but we are so excited by what the future of SEDSConnective holds and we can’t wait to see what happens next!”







A word from our Patron:



“It is very exciting times for SEDSConnective! Congratulations on becoming a Charity. As Patron I’m so proud of all the great work that SEDSConnective has been doing and wish the team all the best on their ongoing journey”


Dr Jessica Eccles MRCPsych MSc PhD Clinical Senior Lecturer MQ/Versus Arthritis Fellow Brighton and Sussex Medical School







Keep up to date with all our news and announcements via our website and social media pages, and more importantly, be sure to keep sharing our story and news – driving ideas, awareness, acceptance and keeping the connections going for transformational change.

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