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An In-Depth Analysis of the 5th SEND Report: Ensuring Complex Needs Are Not Overlooked
The SEND system is under strain, and children with complex needs are being left behind. We break down what the 5th Report says, why SEDSConnective submitted evidence, and how our community’s experiences can help drive real change.
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Nov 17, 20255 min read


Why Autism policy must address hypermobility EDS, Autism ACT 2009: Response to Government Committee
Autism policy must recognise the body-brain connection. Physical pain, fatigue, and hypermobility in autistic people are often dismissed as behaviour, causing harm and misdiagnosis. Learn why integrated health policy is critical."
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Nov 13, 20255 min read


Research- Largest Global study hEDS HSD (hypermobility)
A groundbreaking international survey sheds light on the hidden struggles of thousands living with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders
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Aug 9, 20255 min read


Understanding the Connection Between Dysphagia, EDS, and Hypermobility Disorders
Dysphagia is where you have problems swallowing.
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Aug 3, 20252 min read
Ehlers-Danlos syndromes links to Autism and ADHD
EDS Ehlers-Danlos Autism and ADHD plus other conditions mental health
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Jul 14, 20251 min read


It’s Not Just in Your Head...hidden stuggles of neurodivegent health (hypermobilty)
'groundbreaking era of neuroscience'
'masking pain invalidates your self worth'
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Jun 7, 20252 min read


The School Toolkit for EDS / JHS: the journey behind it and beyond...
I did this voluntarily as I firmly believed children and young people, education staff needed this now and for future generations
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May 25, 20258 min read


Autism Acceptance Of Brain/Body
'Connecting Autism to Physical Health (Hypermobility)'
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Mar 31, 20253 min read


RSD: The Invisible Pain of Rejection Sensitive Dysphoria
Do your emotions hit like a tidal wave? Have you ever felt an overwhelming emotional response so intense that it physically hurts? A...
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Feb 16, 20252 min read


New Study : Hypermobility and emotions are linked to the brain
'People with hypermobility who also feel very anxious had busier brain activity ...'
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Feb 8, 20251 min read


POTS and hypovolemia
Dysautonomia is dysfunction of the autonomic nervous system, which controls essential functions like heart rate, blood pressure,...
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Oct 28, 20242 min read


Autism, Anxiety, mcas and interoception
I was often told 'it was all in my head'
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Oct 12, 20243 min read


What is Gastroparesis?
For the worst days, foods that will move with gravity, like shakes or liquids are generally going to be the best option.
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Jul 31, 20242 min read
Masking my Pain with alcohol
by Gale (43) from Gloucestershire Gale TRIGGER WARNING: Alcohol Addiction. I believe I am neurodivergent. In reading about hypermobility...
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May 31, 20243 min read


What is MCAS? "When mast cells flare the ‘storm’ gathers pace"
These are our ‘allergy’ cells, and the first responders to
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May 12, 20233 min read


WorldMenopauseDay 18th October- The doctors said I was normal range- but my body had had enough: Red ants were the final straw
The doctors said I was normal range- but my body had had enough
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Oct 18, 20222 min read
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