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Tourette's helped me embrace the unknowns of chronic illness- hypermobility & Neurodivergence
As a child, my tics and Tourettic Obsessive Compulsive Disorder (OCD) were so severe that I spent four years unable to dress myself and had no free time to do anything fun

SEDSConnective
May 313 min read
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The School Toolkit for EDS / JHS: the journey behind it and beyond...
I did this voluntarily as I firmly believed children and young people, education staff needed this now and for future generations

SEDSConnective
May 258 min read
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Hypertension and Hypermobility: A Hidden Risk as We Age
When we think of hypermobility, we often focus on joint flexibility, pain, executive functioning, instability, internal pain, fatigue,...

SEDSConnective
May 173 min read
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Autism Acceptance Of Brain/Body
'Connecting Autism to Physical Health (Hypermobility)'

SEDSConnective
Mar 313 min read
107
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'You don't know what you don't know'
We may all be “experts” in our own experiences, but memory is fallible, and our recollections can be shaped by emotions, biases, and the

SEDSConnective
Feb 262 min read
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New Study : Hypermobility and emotions are linked to the brain
'People with hypermobility who also feel very anxious had busier brain activity ...'

SEDSConnective
Feb 81 min read
660
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Liberation Art Gallery: a space for creativity and wellbeing
Welcome to Liberation Art Gallery in connection with SEDSConnective At Liberation Art Gallery, we believe art should be for everyone, not...

SEDSConnective
Jan 313 min read
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Red, White and Blue are my digits you know? February is Raynaud’s Awareness month
Do your fingers get frozen quickly? Do you find you have to warn people before they offer to shake your hands. Are your feet like blocks...

SEDSConnective
Jan 312 min read
215
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Oh my GERD or GORD!
GORD—or, GERD—depending on your location, which stands for gastro-oesophageal reflux disease. Whatever you call it, it’s when acid and...

Jane Green MBE
Nov 24, 20242 min read
189
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Health challenges with hypermobility, Autism ADHD x 4
As a family we don’t fit neatly into boxes. Our bodies and our brains are different.

Jane Green MBE
Oct 31, 20242 min read
402
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POTS and hypovolemia
Dysautonomia is dysfunction of the autonomic nervous system, which controls essential functions like heart rate, blood pressure,...

Jane Green MBE
Oct 28, 20242 min read
257
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Autism, Anxiety and interoception
I was often told 'it was all in my head'

Jane Green MBE
Oct 12, 20243 min read
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What is Dysautonomia?
It is a malfunction of the Autonomic Nervous System - there are 3 systems ...

Jane Green MBE
Oct 9, 20241 min read
222
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What is Inclusion week? Why does it matter ?
We ask to be heard, included and coproduce initiatives in all areas with equality and equity.

SEDSConnective
Sep 25, 20242 min read
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Rejection Sensory Dysphoria ?
The chances I had to have a relationship have been few and far between and because I push people away.

SEDSConnective
Sep 22, 20242 min read
235
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What is Gastroparesis?
For the worst days, foods that will move with gravity, like shakes or liquids are generally going to be the best option.

SEDSConnective
Jul 31, 20242 min read
453
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Press Release - SEDSConnective Celebrates #NeurodivergenceDay on 11th March
SEDSConnective launched #NeurodivergenceDay on 11th March 2024. www.SEDSConnective.org/neurodivergenceday

SEDSConnective
Mar 11, 20242 min read
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What is MCAS? "When mast cells flare the ‘storm’ gathers pace"
These are our ‘allergy’ cells, and the first responders to

Jane Green MBE
May 12, 20233 min read
441
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WorldMenopauseDay 18th October- The doctors said I was normal range- but my body had had enough: Red ants were the final straw
The doctors said I was normal range- but my body had had enough

Jane Green MBE
Oct 18, 20222 min read
243
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Freezing from the inside out!
Core body temperature is usually around 36-38°c. Medication, weather can affect body temperature, as can other hormones, allergies or...

Jane Green MBE
Apr 16, 20211 min read
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