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How Hypermobility, EDS and Lyme Disease Connect
Recent research shows that people with connective tissue disorders face a higher risk of infections, slower healing and lingering inflammation, meaning diagnoses can be easily missed or delayed.
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Nov 11, 20253 min read


Vitamins/supplements and Depression
Foods with magnesium In this large study on depression , researchers looked at the impacts of micronutrients on genetics and genetics on...
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Aug 31, 20252 min read


Research- Largest Global study hEDS HSD (hypermobility)
A groundbreaking international survey sheds light on the hidden struggles of thousands living with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders
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Aug 9, 20255 min read


Connective Bodies/Brains - Hypermobility EDS,JH and Neurodivergence (Autism ADHD +)
Emerging research is revealing strong links between neurodivergent conditions such as Autism, ADHD, Dyspraxia, Tourette's dyslexia and physical traits like joint hypermobility, Ehlers–Danlos syndromes and other connective tissue differences.
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Aug 9, 20251 min read


Understanding the Connection Between Dysphagia, EDS, and Hypermobility Disorders
Dysphagia is where you have problems swallowing.
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Aug 3, 20252 min read


Oh my GERD or GORD!
It’s one of the more common digestive disorders seen with symptomatic hypermobility GERD GORD
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Aug 3, 20252 min read


What is the Beighton Scale / Score
Children are naturally more bendy than adults
Women tend to be more flexible than men
Your usually get much stiffer as you age
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Jul 21, 20252 min read
Ehlers-Danlos syndromes links to Autism and ADHD
EDS Ehlers-Danlos Autism and ADHD plus other conditions mental health
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Jul 14, 20251 min read


Tourette's helped me embrace the unknowns of chronic illness- hypermobility & Neurodivergence
As a child, my tics and Tourettic Obsessive Compulsive Disorder (OCD) were so severe that I spent four years unable to dress myself and had no free time to do anything fun
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May 31, 20253 min read


The School Toolkit for EDS / JHS: the journey behind it and beyond...
I did this voluntarily as I firmly believed children and young people, education staff needed this now and for future generations
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May 25, 20258 min read


Hypertension and Hypermobility: A Hidden Risk as We Age
When we think of hypermobility, we often focus on joint flexibility, pain, executive functioning, instability, internal pain, fatigue,...
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May 17, 20253 min read


Autism Acceptance Of Brain/Body
'Connecting Autism to Physical Health (Hypermobility)'
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Mar 31, 20253 min read


'You don't know what you don't know'
We may all be “experts” in our own experiences, but memory is fallible, and our recollections can be shaped by emotions, biases, and the
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Feb 26, 20252 min read


New Study : Hypermobility and emotions are linked to the brain
'People with hypermobility who also feel very anxious had busier brain activity ...'
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Feb 8, 20251 min read


Liberation Art Gallery: a space for creativity and wellbeing
Welcome to Liberation Art Gallery in connection with SEDSConnective At Liberation Art Gallery, we believe art should be for everyone, not...
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Jan 31, 20253 min read


Red, White and Blue are my digits you know? February is Raynaud’s Awareness month
Do your fingers get frozen quickly? Do you find you have to warn people before they offer to shake your hands. Are your feet like blocks...
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Jan 31, 20252 min read


Health challenges with hypermobility, Autism ADHD x 4
As a family we don’t fit neatly into boxes. Our bodies and our brains are different.
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Oct 31, 20242 min read


POTS and hypovolemia
Dysautonomia is dysfunction of the autonomic nervous system, which controls essential functions like heart rate, blood pressure,...
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Oct 28, 20242 min read


Autism, Anxiety, mcas and interoception
I was often told 'it was all in my head'
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Oct 12, 20243 min read


What is Dysautonomia?
It is a malfunction of the Autonomic Nervous System - there are 3 systems ...
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Oct 9, 20241 min read
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