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Research and Publications

We make sure our members and supporters are always in the loop when it comes to key research. This page links to some of the most cutting edge publications and with the help of our patron (Dr Eccles) we are passionately research based in order to promote the best outcomes for our members. 

 

Check back often, this is a rapidly developing field with ongoing projects and research opportunities around the world. 

 

By donating, you are changing lives in our day to day practice, and our worldwide research.

Just published 18th January 2023! 

Co-Occurring Physical Health Challenges in Neurodivergent Children and Young People: A Topical Review and Recommendation. It is open access and is a fantastic collaboration by Bethany Donaghy, Dr David Moore and Jane Green MBE.

Access here

Recently published

Csecs J et al (2022) – Joint hypermobility neurodivergence to dysautonomia and pain (Frontiers - 2022)and here in the US National Library of Medicine 

All other publications

https://www.researchgate.net/profile/Jessica-Eccles-3
‘ Inside Health’ Neurodivergence and hypermobility Brain /Body connections with Dr Eccles and Jane Green MBE, MA Ed.https://www.bbc.co.uk/sounds/play/m00199ym


Challenging stereotypes in autism – BSMS https://www.bsms.ac.uk/research/neuroscience/challenging-stereotypes-novel-perspectives-on-autism.aspx


Bragee et al – Signs of Intercranial hypertension, hypermobility and craniovervical obstructions in patients with myalgic encephalomyelitis/chronic fatigue syndrome – Frontiers in Neurology (2021)https://www.frontiersin.org/articles/10.3389/fneur.2020.00828/full


Casanova El, Baeza-Velasco C, Buchanan CB, Casanova MF – The relationship between autism and Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders: Journal of Personalized Medicine (2020; 10(4): 260)https://www.mdpi.com/2075-4426/10/4/260

Eccles JA, Iodice V, Dowell NG, Owens A, Hughes L, Skipper S, Lycette Y, Humphries K, Harrison NA, Mathias CJ et al: Joint Hypermobility and autonomic hyperactivity: Relevance to neurodevelopmental disorders – J Neurol. Neurosurg Psychiatry (2014)Google Scholar

 

Eccles Jessica A et al – Beyond Bones: The relevance of variants of connective tissue (hypermobility) to fibromyalgia, ME/CFS and controversies surrounding diagnostic classification – An observational study (MedRxiv – Feb 2020)https://www.medrxiv.org/content/10.1101/2020.02.21.20025072v1
 

Eccles JA, Scott HE, Davies KA, Bond R, David AS, Harrison NE and Critchley HD – Joint Hypermobility and its relevance to common mental illness in adolescents: A population-based longitudinal study (2021)https://www.medrxiv.org/content/10.1101/2020.09.14.20191130v
 

EDS UK – The Ehlers-Danlos syndromes (EDS) GP Toolkit (Ehlers-Danlos.org, 2021 (accessed 2020))https://gptoolkit.ehlers-danlos.org/
 

Jovin D – Disjointed; Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders. Hidden stripes publications (2020)
 

Bragee et al – Signs of Intercranial hypertension, hypermobility and craniovervical obstructions in patients with myalgic encephalomyelitis/chronic fatigue syndrome – Frontiers in Neurology (2021)https://www.frontiersin.org/articles/10.3389/fneur.2020.00828/full
 

Grant, S et al – Autism and chronic ill health; an observational study of symptoms and diagnosis of central sensitivity syndromes in autistic adults (Molecular Autism Vol 13, Article 17 2022)https://molecularautism.biomedcentral.com/articles/10.1186/s13229-022-00486-6
 

Green, J – Understanding hypermobility disorders and syndromes in schools (Spotlight Online NASEN 2019)https://www.sedsconnective.org/post/understanding-hypermobility-disorders-syndromes-in-schools
 

Green, J – Joint hypermobility links neurodivergence to dysautonomia and pain (Frontiers - 2022)https://www.frontiersin.org/articles/10.3389/fpsyt.2021.786916/full
 

Green, J – Autism adjustments needed in your classroom (tes 2022)https://www.tes.com/magazine/teaching-learning/general/autism-5-adjustments-needed-your-classroom

Green, J – We need to do more to help autistic neurodivergent children & young people (psychreg, Feb 2022)https://www.psychreg.org/help-autistic-neurodivergent-children-young-people/ 

Green, J – Raising awareness of pupils with Ehlers-Danlos syndromes/hypermobility spectrum disorders (edpsy, July 2022)https://edpsy.org.uk/blog/2020/raising-awareness-of-pupils-with-ehlers-danlos-syndromes-hypermobility-spectrum-disorders/

Green, J – Dealing with hypermobility means knowing about it first (teachingtimes, Nov 2021)https://www.teachingtimes.com/dealing-with-hyper-mobility-means-knowing-about-it-first/


Green, J – The School Toolkit (Educate Magazine Online 2021)https://www.educatemagazine.com/toolkit/

 

Green, J – Raising awareness of pupils with Ehlers-Danlos syndromes/hypermobility spectrum disorders (edpsy, July 2022)https://edpsy.org.uk/blog/2020/raising-awareness-of-pupils-with-ehlers-danlos-syndromes-hypermobility-spectrum-disorders/
 

Jelsma Lemke D et al – The Relationship between Joint Mobility and Motor Performance in Children with and without the diagnosis of developmental coordination disorder – BMC Pediatrics vol. 13 (2013)https://bmcpediatr.biomedcentral.com/articles/10.1186/1471-2431-13-35

Kindgren Erik et al – Prevalence of ADHD and autism spectrum disorder in children with hypermobility spectrum disorders or hypermobilie Ehlers-Danlos syndrome: A retrospective study – Neuropsychiatric disease and treatment (Feb, 2021)https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7882457/

School Toolkit Launches to transform understanding of hypermobility syndromes in children (SEN Magazine 2021)https://senmagazine.co.uk/content/support-advice/13197/school-toolkit-launches-to-transform-understanding-of-hypermobility-syndromes-in-children/

Jelsma Lemke D et al – The Relationship between Joint Mobility and Motor Performance in Children with and without the diagnosis of developmental coordination disorder – BMC Pediatrics vol. 13 (2013)https://bmcpediatr.biomedcentral.com/articles/10.1186/1471-2431-13-35

Kindgren Erik et al – Prevalence of ADHD and autism spectrum disorder in children with hypermobility spectrum disorders or hypermobilie Ehlers-Danlos syndrome: A retrospective study – Neuropsychiatric disease and treatment (Feb, 2021)https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7882457/

Moore DJ, Eccleston C, Keogh E. 2017. Cognitive load selectively influences the interruptive effect of pain on attention. Pain, 158 :2035-2041 DOI Author Url Publisher Url Public Url

 

Ogden RS, Moore D, Redfern L, McGlone F. 2015. The effect of pain and the anticipation of pain on temporal perception: a role for attention and arousal Cognition and Emotion, DOI Author Url
 

Miserandino, C – ‘But you don’t look sick’ (2003)://efaidnbmnnnibpcajpcglclefindmkaj/https://cdn.totalcomputersusa.com/butyoudontlooksick.com/uploads/2010/02/BYDLS-TheSpoonTheory.pdf

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