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Tourette's helped me embrace the unknowns of chronic illness- hypermobility & Neurodivergence
As a child, my tics and Tourettic Obsessive Compulsive Disorder (OCD) were so severe that I spent four years unable to dress myself and had no free time to do anything fun
SEDSConnective
May 313 min read
67
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The School Toolkit for EDS / JHS: the journey behind it and beyond...
I did this voluntarily as I firmly believed children and young people, education staff needed this now and for future generations
SEDSConnective
May 258 min read
1,126
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Autism Acceptance Of Brain/Body
'Connecting Autism to Physical Health (Hypermobility)'
SEDSConnective
Mar 313 min read
110
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'You don't know what you don't know'
We may all be “experts” in our own experiences, but memory is fallible, and our recollections can be shaped by emotions, biases, and the
SEDSConnective
Feb 262 min read
172
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Oh my GERD or GORD!
GORD—or, GERD—depending on your location, which stands for gastro-oesophageal reflux disease. Whatever you call it, it’s when acid and...
Jane Green MBE
Nov 24, 20242 min read
190
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Health challenges with hypermobility, Autism ADHD x 4
As a family we don’t fit neatly into boxes. Our bodies and our brains are different.
Jane Green MBE
Oct 31, 20242 min read
406
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Autism, Anxiety and interoception
I was often told 'it was all in my head'
Jane Green MBE
Oct 12, 20243 min read
750
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What is Dysautonomia?
It is a malfunction of the Autonomic Nervous System - there are 3 systems ...
Jane Green MBE
Oct 9, 20241 min read
231
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What is Inclusion week? Why does it matter ?
We ask to be heard, included and coproduce initiatives in all areas with equality and equity.
SEDSConnective
Sep 25, 20242 min read
28
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Rejection Sensory Dysphoria ?
The chances I had to have a relationship have been few and far between and because I push people away.
SEDSConnective
Sep 22, 20242 min read
236
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What is Gastroparesis?
For the worst days, foods that will move with gravity, like shakes or liquids are generally going to be the best option.
SEDSConnective
Jul 31, 20242 min read
453
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Masking my Pain with alcohol
by Gale (43) from Gloucestershire Gale TRIGGER WARNING: Alcohol Addiction. I believe I am neurodivergent. In reading about hypermobility...
Jane Green MBE
May 31, 20243 min read
227
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Member in the news- Severe migraines and chronic illness
Natasha Green a member of SEDSConnective talks about severe migraines and how chronic illness has been a huge part of her life. She...
Jane Green MBE
Apr 20, 20241 min read
103
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Crossing Borders, Connecting Worlds: My Journey with Neurodivergence and Connective Tissue Disorders
Dr Kana Grace, PhD Neurodivergent neurodivergence advocate and researcher Okinawa, Japan @kanabaletti https://linktr.ee/kanagrace...
Jane Green MBE
Dec 29, 20232 min read
206
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What is MCAS? "When mast cells flare the ‘storm’ gathers pace"
These are our ‘allergy’ cells, and the first responders to
Jane Green MBE
May 12, 20233 min read
451
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WorldMenopauseDay 18th October- The doctors said I was normal range- but my body had had enough: Red ants were the final straw
The doctors said I was normal range- but my body had had enough
Jane Green MBE
Oct 18, 20222 min read
243
2
Freezing from the inside out!
Core body temperature is usually around 36-38°c. Medication, weather can affect body temperature, as can other hormones, allergies or...
Jane Green MBE
Apr 16, 20211 min read
8,040
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