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Research- Largest Global study hEDS HSD (hypermobility)
A groundbreaking international survey sheds light on the hidden struggles of thousands living with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders
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Aug 9, 20255 min read
Connective Bodies/Brains - Hypermobility EDS,JH and Neurodivergence (Autism ADHD +)
Emerging research is revealing strong links between neurodivergent conditions such as Autism, ADHD, Dyspraxia, Tourette's dyslexia and physical traits like joint hypermobility, Ehlers–Danlos syndromes and other connective tissue differences.
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Aug 9, 20251 min read
It’s Not Just in Your Head...hidden stuggles of neurodivegent health (hypermobilty)
'groundbreaking era of neuroscience'
'masking pain invalidates your self worth'
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Jun 7, 20252 min read
The School Toolkit for EDS / JHS: the journey behind it and beyond...
I did this voluntarily as I firmly believed children and young people, education staff needed this now and for future generations
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May 25, 20258 min read
'You don't know what you don't know'
We may all be “experts” in our own experiences, but memory is fallible, and our recollections can be shaped by emotions, biases, and the
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Feb 26, 20252 min read
RSD: The Invisible Pain of Rejection Sensitive Dysphoria
Do your emotions hit like a tidal wave? Have you ever felt an overwhelming emotional response so intense that it physically hurts? A...
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Feb 16, 20252 min read
Red, White and Blue are my digits you know? February is Raynaud’s Awareness month
Do your fingers get frozen quickly? Do you find you have to warn people before they offer to shake your hands. Are your feet like blocks...
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Jan 31, 20252 min read
Health challenges with hypermobility, Autism ADHD x 4
As a family we don’t fit neatly into boxes. Our bodies and our brains are different.
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Oct 31, 20242 min read
Autism, Anxiety, mcas and interoception
I was often told 'it was all in my head'
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Oct 12, 20243 min read
What is Inclusion week? Why does it matter ?
We ask to be heard, included and coproduce initiatives in all areas with equality and equity.
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Sep 25, 20242 min read
Rejection Sensory Dysphoria ?
The chances I had to have a relationship have been few and far between and because I push people away.
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Sep 22, 20242 min read
What is Gastroparesis?
For the worst days, foods that will move with gravity, like shakes or liquids are generally going to be the best option.
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Jul 31, 20242 min read
Masking my Pain with alcohol
by Gale (43) from Gloucestershire Gale TRIGGER WARNING: Alcohol Addiction. I believe I am neurodivergent. In reading about hypermobility...
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May 31, 20243 min read
Why does it matter? Traumatisation of patients by some clinicians
Warning: mentions suicidal / trauma In case you missed this paper (below) it is about traumatisation of people with hypermobility...
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May 26, 20242 min read
"Walking the path of thorns" along with hypermobility EDS and dyslexia
by Solomon Ballin, Age 27 I was diagnosed with dyslexia at 12 years old, it is said that I could also have other neurodivergence...
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Apr 30, 20242 min read
Member in the news- Severe migraines and chronic illness
Natasha Green a member of SEDSConnective talks about severe migraines and how chronic illness has been a huge part of her life. She...
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Apr 20, 20241 min read
Press Release - SEDSConnective Celebrates #NeurodivergenceDay on 11th March
SEDSConnective launched #NeurodivergenceDay on 11th March 2024. www.SEDSConnective.org/neurodivergenceday
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Mar 11, 20242 min read
What is MCAS? "When mast cells flare the ‘storm’ gathers pace"
These are our ‘allergy’ cells, and the first responders to
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May 12, 20233 min read
WorldMenopauseDay 18th October- The doctors said I was normal range- but my body had had enough: Red ants were the final straw
The doctors said I was normal range- but my body had had enough
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Oct 18, 20222 min read
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