Our Story
SEDSConnective was founded by Jane Green MBE. Jane was told she was “dim” and a hyponchondriac, often missing in school. At 16 she only two qualifications at age 16. She knew she was different but there was no science or understanding in those decades. She brought up her 2 children as a single parent but her eldest, who had trauma at birth, was early diagnosed with ADHD, autism dyspraxia and mild learning disability plus many health issues. Her youngest also had severe eczema and both had food allergies. Jane knew she was different but there was no science or knowledge for it . She decided to help teachers teach children like her own, not only to stop her children being continuously excluded but knew there would be others. The rest of her story is under Founder.
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In 2018, Jane launched SEDSConnective in Sussex, UK. She started it as a voluntary charity without any funding or connections, driven solely by her passion to make a difference and improve outcomes to survive and be believed in her local area. It grew.
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Today, we are a global charity with many volunteers, advisers and a world renowed Patron researcher, Dr Eccles. We have thousands of members worldwide. We remain committed to Jane's original vision, fostering a sense of community where individuals support one another. Whenever possible, we also collaborate with other charities and allied professionals to enhance our impact.​​​
Our Founder
Jane Green MBE
In 2023 Jane was honoured with an MBE for Services to Neurodivergent People and those with related Joint Hypermobility conditions including Ehlers-Danlos syndromes. See more on this here


Our Patron
Dr Jessica Eccles
Dr Jessica Eccles is a psychiatrist and also a leading researcher into bodies brains which is quite amazing.
FRCPsych PhD
Reader (Associate Professor) in Brain-Body Medicine
IAT co-lead, Co-Director Sussex Health and Care Research Training Hub
Brighton and Sussex Medical School
Our Story
SEDSConnective was founded by Jane Green MBE. Jane was told she was “dim” and a hyponchondriac, often missing in school. At 16 she only two qualifications at age 16. She knew she was different but there was no science or understanding in those decades. She brought up her 2 children as a single parent but her eldest, who had trauma at birth, was early diagnosed with ADHD, autism dyspraxia and mild learning disability plus many health issues. Her youngest also had severe eczema and both had food allergies. Jane knew she was different but there was no science or knowledge for it . She decided to help teachers teach children like her own, not only to stop her children being continuously excluded but knew there would be others. The rest of her story is under Founder.
​
In 2018, Jane launched SEDSConnective in Sussex, UK. She started it as a voluntary charity without any funding or connections, driven solely by her passion to make a difference and improve outcomes to survive and be believed in her local area. It grew.
​
Today, we are a global charity with many volunteers, advisers and a world renowed Patron researcher, Dr Eccles. We have thousands of members worldwide. We remain committed to Jane's original vision, fostering a sense of community where individuals support one another. Whenever possible, we also collaborate with other charities and allied professionals to enhance our impact.​​​
Our Founder
Jane Green MBE
In 2023 Jane was honoured with an MBE for Services to Neurodivergent People and those with related Joint Hypermobility conditions including Ehlers-Danlos syndromes. See more on this here

SEDSConnective is a community-led charity supporting those with symptomatic hypermobility and neurodivergence (you do not need a diagnosis) families/carers and allied professionals .
#EDS #HSD #GJH #POTS #dysautonomia #chronicFatigue #IBS #Autism #ADHD #dyspraxia #dyslexia
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​From our inception, we have been guided by those with lived experience. Today, we are proud to have built a vibrant community with thousands of members worldwide.
Our Trustees

Kelly Harris

Sonal Bisht

Andrea Sanchez

Jane Green

Katy Brizell

Stephanie Lucas
Our Advisers

Cheryl Harris
Dietitian

Dr David Moore
Pain researcher

Dr Alan Hakim
Rheumatologist

Bonnie Southgate
MSK adviser Rehab specialist

Jane Green MBE
Educationalist

Dr. Lhara Mullins
Mental Health

Natalie Gibellini
Alexander Technique Teacher
Emma Greaves
School Nurse

