SEDSConnective improves and actively supports the lives of people with SH
EDS, HSD and ND (primarily autism, ADHD, dyspraxia, TS) and associated conditions, families and carers, in health, education, social care, employment and transport accessibility.
We collaborate with professionals, researchers and advisers in these allied fields, with organisations and other charities in mutual reciprocity.
We aim to raise awareness and acceptance of our issues in health, education, social care, employment and in transport accessibility through connection to allied professionals, advocacy and research.
We are independent and mainly experience by expert led from Board down but operate co-productively in essence. We operate at general member level supporting with advice, signposting and empowering members to understand but also in the local region actually actively support by uniquely funding specialist activities and therapies.
More widely we support with advocacy and signposting, with our own publications, research collaborations, leading research from our Patron Dr J Eccles and her team, webinars and professional talks at conferences. We sit on various organisations and Boards as respected specialists in this area to actively support us, ‘nothingAboutUsWithoutUs’
We work in highly collaborative ways to make transformational change leading to better solutions and outcomes both locally and globally. We not only have EDS HSD and/or neurodivergent but have established specialisms in these areas or allied areas like education, health, social care and or established disability advocates.
Our Trustee Team:
Chair and founder
On 26th June 2018 Jane founded SEDSconnective for specialised support and improve awareness, knowledge and understanding of EDS/HSD/JHS and co-occurring conditions. To advocate in key areas of health, social care, education, employment and transport accessibility locally.
Patron of SEDSConnective
Dr J Eccles
Jessica Eccles trained in medicine at University of Cambridge and University of Oxford, completing a BA in The History and Philosophy of Science, sparking a keen interest in philosophy of mind and brain-body interactions, and since graduation from medical school has pursued a combined academic clinical path at Brighton and Sussex Medical School. As an MRC Clinical Research Training Fellow she completed her PhD in the relationship between joint hypermobility, autonomic dysfunction and psychiatric symptoms and following an NIHR Academic Clinical Lectureship is now a Clinical Senior Lecturer in the department of Neuroscience at BSMS. She holds an honorary clinical contract with Sussex Partnership NHS Foundation Trust where she works in the Neurodevelopmental Service. Alongside colleagues, she also set up the Immunopsychiatry service at Sussex Partnership NHS Foundation Trust.