top of page

Our Story

SEDSConnective was founded by Jane Green MBE.    Jane was told she was “dim” and a hyponchondriac, often missing in school.  At 16 she only two qualifications at age 16.   She knew she was different but there was no science or understanding in those decades. She brought up her 2 children as a single parent but her eldest, who had trauma at birth, was early diagnosed with ADHD, autism dyspraxia and mild learning disability plus many health issues. Her youngest also had severe eczema and both had food allergies. Jane knew she was different but there was no science or knowledge for it . She decided to help teachers teach children like her own, not only to stop her children being continuously excluded but knew there would be others. The rest of her story is under Founder. 

​

In 2018, Jane launched SEDSConnective in Sussex, UK. She started it as a voluntary charity without any funding or connections, driven solely by her passion to make a difference and improve outcomes to survive and be believed in her local area.  It grew. 

​

Today, we are a global charity with many volunteers, advisers and a world renowed Patron researcher, Dr Eccles.  We have thousands of members worldwide. We remain committed to Jane's original vision, fostering a sense of community where individuals support one another. Whenever possible, we also collaborate with other charities and allied professionals to enhance our impact.​​​

Our Founder

Jane Green MBE

In 2023 Jane was honoured with an MBE for Services to Neurodivergent People and those with related Joint Hypermobility conditions including Ehlers-Danlos syndromes. See more on this here 

mbe (Facebook Post (Square)).png

Our Patron

Dr Jessica Eccles 

Dr Jessica Eccles is a psychiatrist and also a leading researcher into bodies brains which is quite amazing.

FRCPsych PhD
Reader (Associate Professor) in Brain-Body Medicine

IAT co-lead, Co-Director Sussex Health and Care Research Training Hub

Brighton and Sussex Medical School

Chair RCPSYCH Neurodevelopmental Psychiatry SIG

Our Story

SEDSConnective was founded by Jane Green MBE.    Jane was told she was “dim” and a hyponchondriac, often missing in school.  At 16 she only two qualifications at age 16.   She knew she was different but there was no science or understanding in those decades. She brought up her 2 children as a single parent but her eldest, who had trauma at birth, was early diagnosed with ADHD, autism dyspraxia and mild learning disability plus many health issues. Her youngest also had severe eczema and both had food allergies. Jane knew she was different but there was no science or knowledge for it . She decided to help teachers teach children like her own, not only to stop her children being continuously excluded but knew there would be others. The rest of her story is under Founder. 

​

In 2018, Jane launched SEDSConnective in Sussex, UK. She started it as a voluntary charity without any funding or connections, driven solely by her passion to make a difference and improve outcomes to survive and be believed in her local area.  It grew. 

​

Today, we are a global charity with many volunteers, advisers and a world renowed Patron researcher, Dr Eccles.  We have thousands of members worldwide. We remain committed to Jane's original vision, fostering a sense of community where individuals support one another. Whenever possible, we also collaborate with other charities and allied professionals to enhance our impact.​​​

Our Founder

Jane Green MBE

In 2023 Jane was honoured with an MBE for Services to Neurodivergent People and those with related Joint Hypermobility conditions including Ehlers-Danlos syndromes. See more on this here 

WhatsApp Image 2025-04-26 at 19.28.41_b06b1fe1.jpg

SEDSConnective is a community-led charity supporting those with symptomatic hypermobility  and neurodivergence (you do not need a diagnosis) families/carers and allied professionals .
#EDS #HSD #GJH #POTS  #dysautonomia  #chronicFatigue #IBS #Autism #ADHD #dyspraxia #dyslexia 

​

​From our inception, we have been guided by those with lived experience. Today, we are proud to have built a vibrant community with thousands of members worldwide.

Our Trustees

Kelly Harris 1-1

Kelly Harris

SonalBisht.jpg

Sonal Bisht

Andrea Sanchez 1-1

Andrea Sanchez

me2.png

Jane Green 

Katy Brizell

Katy Brizell

WhatsApp Image 2025-03-07 at 21_edited.j

Stephanie Lucas

Our Advisers 

CherylHarris_edited.jpg

Cheryl Harris 

Dietitian 

DMoore_edited.jpg

Dr David Moore

Pain researcher

drHakim_edited.jpg

Dr Alan Hakim

Rheumatologist

Bonnie_edited_edited.jpg

Bonnie Southgate

MSK adviser Rehab specialist

Jane Green

Jane Green MBE 

Educationalist 

Dr_edited.jpg

Dr. Lhara Mullins

Mental Health

natalig-topaz-face-upscale-4x_edited.jpg

Natalie Gibellini

Alexander Technique Teacher

favicon_non_transparent.png

Emma Greaves

School Nurse 

KaiRabenstein.jpg

Dr Kai  Rabenstein, MD

Anaesthesia Adviser

Let's Connect

Address: Planet House,

North Heath Lane Industrial Estate, Horsham,

West Sussex RH12 5QE

Phone: 07376 973 688

​

general@sedsconnective.org

​

Reg. Charity England Wales No: 1199724

Reg. Charity Scotland No: SC054110

  • Facebook
  • X
  • Instagram
  • LinkedIn
  • bluesky-black-round-circle-logo-24460
  • Youtube
Legal Stuff

Cookie Policy
Terms of use

Privacy Policy

Safeguarding Policy

​​

©2025 by SEDSConnective 

Scottish Charity Regulator
Charity Commission England and Wales.
Keep Updated

Subscribe to our email list to receive newsletters, blog posts and updates

National Lottery Community Fund
Postcode Society Trust
Disability Employment Charter
bottom of page