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Research- Largest Global study hEDS HSD (hypermobility)
A groundbreaking international survey sheds light on the hidden struggles of thousands living with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders
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Aug 9, 20255 min read
Understanding the Connection Between Dysphagia, EDS, and Hypermobility Disorders
Dysphagia is where you have problems swallowing.
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Aug 3, 20252 min read
Ehlers-Danlos syndromes links to Autism and ADHD
EDS Ehlers-Danlos Autism and ADHD plus other conditions mental health
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Jul 14, 20251 min read
It’s Not Just in Your Head...hidden stuggles of neurodivegent health (hypermobilty)
'groundbreaking era of neuroscience'
'masking pain invalidates your self worth'
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Jun 7, 20252 min read
'You don't know what you don't know'
We may all be “experts” in our own experiences, but memory is fallible, and our recollections can be shaped by emotions, biases, and the
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Feb 26, 20252 min read
Why does it matter? Traumatisation of patients by some clinicians
Warning: mentions suicidal / trauma In case you missed this paper (below) it is about traumatisation of people with hypermobility...
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May 26, 20242 min read
"Walking the path of thorns" along with hypermobility EDS and dyslexia
by Solomon Ballin, Age 27 I was diagnosed with dyslexia at 12 years old, it is said that I could also have other neurodivergence...
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Apr 30, 20242 min read
Member in the news- Severe migraines and chronic illness
Natasha Green a member of SEDSConnective talks about severe migraines and how chronic illness has been a huge part of her life. She...
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Apr 20, 20241 min read
Press Release - SEDSConnective Celebrates #NeurodivergenceDay on 11th March
SEDSConnective launched #NeurodivergenceDay on 11th March 2024. www.SEDSConnective.org/neurodivergenceday
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Mar 11, 20242 min read
Crossing Borders, Connecting Worlds: My Journey with Neurodivergence and Connective Tissue Disorders
Dr Kana Grace, PhD Neurodivergent neurodivergence advocate and researcher Okinawa, Japan @kanabaletti https://linktr.ee/kanagrace...
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Dec 29, 20232 min read
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