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Crawley's Nominated Charity for EDS, HSD and Symtomatic Hypermobility!
Morgan Flack, Acting Mayor for Crawley, recently announced that SEDS are her nominated charity for Ehlers-Danlos Syndromes,...

Jane Green MBE
Nov 5, 20211 min read
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EVENT: nasen Live 2021 - Inclusion beyond COVID
We are excited to announce that nasen Live will be returning to the Vox Conference Centre in Birmingham on the 24th September 2021 nasen...

Jane Green MBE
Sep 20, 20211 min read
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EVENT: Autism Explained Online Summit - Tuesday 21st September - 9am
Jane Green Edsau is looking forward to being part of this year’s Autism Explained and will be speaking about Hypermobility (EDS / JHS),...

Jane Green MBE
Sep 20, 20211 min read
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Pain & The Alexander Technique
BLOG PIECE by Natalie Gibellini As far back as I can remember, I recall body pains. After some of my injuries the pain didn’t resolve...

Jane Green MBE
Sep 17, 20212 min read
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What schools need to know to support learners with hypermobility and Ehlers-Danlos syndrome
BLOG PIECE - Jane Green Jane recently wrote a blog piece for Special Needs Jungle about the National UK SchoolToolkit for EDS and JHS...

Jane Green MBE
Aug 20, 20211 min read
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What is the Alexander Technique?
BLOG POST by Natalie Gibellini Many people I speak to don’t know what the Alexander Technique is! First it is important to say that like...

Jane Green MBE
Aug 20, 20212 min read
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Aerial acrobatics with Hypermobile Ehlers-Danlos Syndromes
by Anna Hayes As a kid I was always really flexible but also chunky. I followed my sisters footsteps in gymnastics, but I wasn’t very...

Jane Green MBE
Aug 17, 20213 min read
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Applying the Alexander Technique with Hypermobility Issues
I'm Natalie, 39 from Seaford. I have hypermobility, without diagnosis. I spent many years trying unsuccessfully to address debilitating...

Jane Green MBE
Jul 16, 20212 min read
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What helps you?
Member Blog Post By LAUREN DALY Whether you struggle with Ehlers-Danlos Syndrome (EDS), Long Covid, are Neurodivergent or have any other...

Jane Green MBE
Jun 30, 20212 min read
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UK School Toolkit for EDS and JHS Launch
Yesterday (27th May 2021) saw the launch of the FREE UK School Toolkit for EDS & JHS developed by The Ehlers-Danlos Support UK in...

Jane Green MBE
May 28, 20212 min read
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"I hadn't even heard of EDS..!"
BLOG POST by Becky Orpin It was just over a year ago when Jane contacted me via a local COVID-19 support group, asking if I would be...

Jane Green MBE
May 13, 20213 min read
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"I’m Invisibly Disabled & The Return Of ‘Normal’ Life Terrifies Me"
PRESS INTERVIEW Jane Green was recently interviewed by Refinery 29 on living with a hidden disability post pandemic. "There needs to be...

Jane Green MBE
May 11, 20211 min read
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How retailers can improve online accessibility and why it matters...
PRESS INTERVIEW Retail Insight Networks talks with Jane Green and retail and accessibility experts to find out how retailers can improve...

Jane Green MBE
May 6, 20211 min read
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‘I’d dislocate my shoulder putting my coat on, but I was told I was a hypochondriac’ - Jane Green
PRESS INTERVIEW Jane Green was recently interviewed by iNews as part of Ehlers-Danlos Syndromes Awareness Month in May 2021. 'Once...

Jane Green MBE
May 3, 20211 min read
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Freezing from the inside out!
Core body temperature is usually around 36-38°c. Medication, weather can affect body temperature, as can other hormones, allergies or...

Jane Green MBE
Apr 16, 20211 min read
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Chronic Primary or Secondary Pain - Written by Jane Green
Following the advisory note from NICE yesterday on chronic primary or secondary pain sufferers and their pain management I felt compelled...

Jane Green MBE
Apr 8, 20212 min read
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Why ‘Going Gold’ is important on Autism Acceptance Day – 2nd April
BLOG PIECE - Jane Green for scie.org.uk - 2nd April 2021 Traditionally, 2 April has been known as Autism Awareness Day with jigsaw piece...

Jane Green MBE
Apr 2, 20211 min read
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Why ‘Going Gold’ is important on Autism Acceptance Day – 2nd April
BLOG PIECE - Jane Green edpsy.org.uk - 2 April 2021 So traditionally April 2nd has been known as Autism Awareness Day with jigsaw piece...

Jane Green MBE
Apr 2, 20211 min read
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Am I rare or disbelieved?
After years of suffering with my symptoms, being told I'm not 'sick enough'...

Jane Green MBE
Mar 5, 20212 min read
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'The Invisible Illness'
I am Yasmin Wilson 20 years, a final-year film student from West Sussex. I also have Ehlers-Danlos Syndromes (EDS). EDS and Hypermobile...

Jane Green MBE
Feb 12, 20212 min read
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Challenging Stereotypes: Novel Perspectives on Autism (Brighton & Sussex Medical School)
Autism is a neurodevelopmental condition in which patterns of social interaction, emotional communication and behaviour differ from the...

Jane Green MBE
Feb 8, 20211 min read
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MEMBER BLOG: "How working from home has helped some disabled people during the pandemic"
Kindly written by SEDS member, Charlotte Schroeter. Charlotte - 29, lives in Horsham and works in marketing and communications. She has...

Jane Green MBE
Jan 27, 20211 min read
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SEDS 2020 End of Year Recap
2020 SEDS End of Year Review An extremely challenging and eventful 2020! As we welcome in a (hopefully) much better New Year, it enables...

Jane Green MBE
Jan 6, 20214 min read
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Understanding Hypermobility Disorders/syndromes in schools
Published and presented by NASEN, Jane Green, MA Ed. ex AHT and lead autism educationalist talks about symptomatic hypermobility issues,...

Jane Green MBE
Jan 3, 20211 min read
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