SEDS 2020 End of Year Recap
2020 SEDS End of Year Review An extremely challenging and eventful 2020! As we welcome in a (hopefully) much better New Year, it enables...
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Jane Green MBE
- Jan 3, 2021
- 1 min
Understanding Hypermobility Disorders/syndromes in schools
Published and presented by NASEN, Jane Green, MA Ed. ex AHT and lead autism educationalist talks about symptomatic hypermobility issues,...
2,3100
Jane Green MBE
- Dec 16, 2020
- 3 min
Online meetings- I never knew how stressful these were! Jane Green connective@jgjanegreen
I never knew how stressful these were! Previously I worked as an Assistant Headteacher and national consultant/educationalist,trainer, so...
1020
Jane Green MBE
- Nov 27, 2020
- 2 min
You're on MUTE!
In the Covid era, digital technology has both improved the accessibility to being heard but also heightened the inaccessibility and...
320
Jane Green MBE
- Nov 16, 2020
- 1 min
Delighted that my Ehlers-Danlos and Hypermobility blog for Edpsy.org.uk is 2nd most read in 2020!
By Jane Green MA Ed. Edpsy.org.uk is an online space for educational psychologists to share, create, engage, debate, enthuse, and work...
850
Jane Green MBE
- Oct 18, 2020
- 3 min
Liz Argall writes about SEDS
We are delighted to be featured in poet & author Liz Argall’s comic ‘Things without arms and without legs’, and in her below blog. For...
410
Jane Green MBE
- Oct 18, 2020
- 3 min
My Doctor was very excited I might be her first bionic patient!
http://arma.uk.net/how-not-to-be-a-bionic-woman/?fbclid=IwAR3la1ydhEtu1VovktIcgYa6Jby2ZWC5VDidX8ZbSMLxU6QXRfQIWE4vODs Better...
680
Jane Green MBE
- Sep 21, 2020
- 2 min
I had no idea this would be my future career! - DapperDreads
I’m Lisa I'm 36 and from East Sussex. I wanted to share some of my experience in the hope that it would spur someone else to take that...
1070
Jane Green MBE
- Aug 19, 2020
- 1 min
Double Jeopardy-Late diagnosis hypermobility and autism!
Our Chair was invited on to the 'Challenging stereotypes of autism' symposium at Brighton and Sussex Medical School. She spoke about her...
960
Jane Green MBE
- Aug 9, 2020
- 3 min
West Sussex woman tells about living life with 'invisible disability'
A West Sussex woman who had to leave her job due to the effects of an 'invisible disability' has set up a group to support others going...
870
Jane Green MBE
- Jul 26, 2020
- 4 min
Why schools need to know about hypermobility syndromes
Schools need to be more aware of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) to better support pupils...
1080
Jane Green MBE
- Jul 19, 2020
- 4 min
Why students with hypermobility syndromes plus other issues struggle to attain and achieve in school
Increasingly Ehlers-Danlos syndromes (EDS) and the closely related Hypermobility Spectrum Disorders (HSD) are being diagnosed in some...
1270
Jane Green MBE
- Jun 15, 2020
- 1 min
PoTS UK
SEDS is linking with medical practitioners, clinical commissioning groups, sustainable transformation partnerships, education...
210
Jane Green MBE
- Jun 15, 2020
- 1 min
Covid-19 & Chronic Illness, CFS/ME
Jane speaks about EDS/HSD on TV and Radio. Latest- one item was on how Covid19 was affecting people with chronic illness/disability such...
250
Jane Green MBE
- Jun 15, 2020
- 1 min
Carer's blog
Links with Carer's charity in Sussex- Rachel, a SEDS member, writes about her issues as a carer of her daughter with Ehlers-Danlos...
120
Jane Green MBE
- Jun 15, 2020
- 1 min
Partner Organisations & Charities
SEDS is linking with medical practitioners, clinical commissioning groups, sustainable transformation partnerships, education...
250
Jane Green MBE
- May 11, 2020
- 1 min
BBC Sussex Community Heroes Awards
Latest - BBC Sussex Community Heroes Awards Sussex, Surrey and NE Hants.2019, our Chair Jane Green was runner up in the Carer category...
300
Jane Green MBE
- Apr 23, 2020
- 1 min
Grateful and honoured
We are extremely grateful and honoured to have received a grant from Sussex Community Foundation. This will help SEDS continue to...
120
Jane Green MBE
- Mar 25, 2020
- 1 min
Proud to have SEDS mentioned
SEDS mentioned as an example of local support in an article in Colostomy UK's magazine Tidings. The article was wriiten from experience...
110
Jane Green MBE
- Feb 7, 2020
- 1 min
Successful funding offer extended
Due to the 70% increase in our members applying for our funding support for activities, we have extended our offer until the end of...
200
Jane Green MBE
- Jan 17, 2020
- 2 min
SEDS are delighted
SEDS Delighted With £500 Donation From Sussex Police SEDS (Sussex Ehlers-Danlos Syndrome and Hypermobility Support) is delighted to have...
690
Jane Green MBE
- Jan 7, 2020
- 1 min
Come meet us
Saturday 11th 10.30 at the Park Barn Horsham We are receiving a donation from the Sussex Police Property Act Fund and the Police are also...
120
Jane Green MBE
- Nov 29, 2019
- 1 min
SEDS Receives Magic Little Grant
We have received a Magic Little Grant through the partnership between Localgiving and the Postcode Community Trust.  The Postcode...
110
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