PoTS UK
SEDS is linking with medical practitioners, clinical commissioning groups, sustainable transformation partnerships, education...
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jane green
- Jun 15, 2020
- 1 min
Covid-19 & Chronic Illness, CFS/ME
Jane speaks about EDS/HSD on TV and Radio. Latest- one item was on how Covid19 was affecting people with chronic illness/disability such...
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jane green
- Jun 15, 2020
- 1 min
Carer's blog
Links with Carer's charity in Sussex- Rachel, a SEDS member, writes about her issues as a carer of her daughter with Ehlers-Danlos...
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jane green
- Jun 15, 2020
- 1 min
Partner Organisations & Charities
SEDS is linking with medical practitioners, clinical commissioning groups, sustainable transformation partnerships, education...
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jane green
- May 11, 2020
- 1 min
BBC Sussex Community Heroes Awards
Latest - BBC Sussex Community Heroes Awards Sussex, Surrey and NE Hants.2019, our Chair Jane Green was runner up in the Carer category...
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jane green
- Apr 23, 2020
- 1 min
Grateful and honoured
We are extremely grateful and honoured to have received a grant from Sussex Community Foundation. This will help SEDS continue to...
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jane green
- Mar 25, 2020
- 1 min
Proud to have SEDS mentioned
SEDS mentioned as an example of local support in an article in Colostomy UK's magazine Tidings. The article was wriiten from experience...
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jane green
- Feb 7, 2020
- 1 min
Successful funding offer extended
Due to the 70% increase in our members applying for our funding support for activities, we have extended our offer until the end of...
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jane green
- Jan 17, 2020
- 2 min
SEDS are delighted
SEDS Delighted With £500 Donation From Sussex Police SEDS (Sussex Ehlers-Danlos Syndrome and Hypermobility Support) is delighted to have...
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jane green
- Jan 7, 2020
- 1 min
Come meet us
Saturday 11th 10.30 at the Park Barn Horsham We are receiving a donation from the Sussex Police Property Act Fund and the Police are also...
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jane green
- Nov 29, 2019
- 1 min
SEDS Receives Magic Little Grant
We have received a Magic Little Grant through the partnership between Localgiving and the Postcode Community Trust. The Postcode...
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jane green
- Nov 28, 2019
- 1 min
Festive offer for our members
To give all our members the opportunity to have a festive treat and/or start the New Year in a positive way we are offering full funding...
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jane green
- Nov 27, 2019
- 1 min
Take away learnings from POTS UK speaker
Brilliant meeting held on Saturday 23rd November by SEDS and EDS UK with a guest speaker from POTS UK. There were many discussions plus...
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jane green
- Nov 27, 2019
- 2 min
Gatwick Accessibility Day Learnings
Member 1 I participated in this years Gatwick accessibility day last Saturday and found it to be a very enjoyable afternoon. I took my...
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