Blog

I never knew how stressful these were! Previously I worked as an Assistant Headteacher and national consultant/educationalist,trainer, so...

In the Covid era, digital technology has both improved the accessibility to being heard but also heightened the inaccessibility and...

By Jane Green MA Ed. Edpsy.org.uk is an online space for educational psychologists to share, create, engage, debate, enthuse, and work...

We are delighted to be featured in poet & author Liz Argall’s comic ‘Things without arms and without legs’, and in her below blog. For...

http://arma.uk.net/how-not-to-be-a-bionic-woman/?fbclid=IwAR3la1ydhEtu1VovktIcgYa6Jby2ZWC5VDidX8ZbSMLxU6QXRfQIWE4vODs Better...

I’m Lisa I'm 36 and from East Sussex. I wanted to share some of my experience in the hope that it would spur someone else to take that...

Our Chair was invited on to the 'Challenging stereotypes of autism' symposium at Brighton and Sussex Medical School. She spoke about her...

A West Sussex woman who had to leave her job due to the effects of an 'invisible disability' has set up a group to support others going...

Schools need to be more aware of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) to better support pupils...

Increasingly Ehlers-Danlos syndromes (EDS) and the closely related Hypermobility Spectrum Disorders (HSD) are being diagnosed in some...

SEDS is linking with medical practitioners, clinical commissioning groups, sustainable transformation partnerships, education...

Jane speaks about EDS/HSD on TV and Radio. Latest- one item was on how Covid19 was affecting people with chronic illness/disability such...

Links with Carer's charity in Sussex- Rachel, a SEDS member, writes about her issues as a carer of her daughter with Ehlers-Danlos...

SEDS is linking with medical practitioners, clinical commissioning groups, sustainable transformation partnerships, education...

Latest - BBC Sussex Community Heroes Awards Sussex, Surrey and NE Hants.2019, our Chair Jane Green  was runner up in the Carer category...

We are extremely grateful and honoured to have received a grant from Sussex Community Foundation. This will help SEDS continue to...

SEDS mentioned as an example of local support in an article in Colostomy UK's magazine Tidings. The article was wriiten from experience...

Due to the 70% increase in our members applying for our funding support for activities, we have extended our offer until the end of...

SEDS Delighted With £500 Donation From Sussex Police SEDS (Sussex Ehlers-Danlos Syndrome and Hypermobility Support) is delighted to have...

Saturday 11th 10.30 at the Park Barn Horsham We are receiving a donation from the Sussex Police Property Act Fund and the Police are also...

We have received a Magic Little Grant through the partnership between Localgiving and the Postcode  Community Trust.   The Postcode...

To give all our members the opportunity to have a festive treat and/or start the New Year in a positive way we are offering full funding...

Brilliant meeting held on Saturday 23rd November by SEDS and EDS UK with a guest speaker from POTS UK. There were many discussions plus...