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We're now a charity!
We are absolutely delighted to announce that we have been granted charitable status by the Charity Commission. This will open up many...

Jane Green MBE
Jul 25, 20222 min read
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'Fluffy Supports'
BLOG POST - Greg Rix, 26, teacher from West Sussex and Trustee at www.SEDSconnective.org I sit here writing whilst my beloved is in an...

Jane Green MBE
Jul 21, 20222 min read
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The Power and Potential of Peer support
By Sue Freeman, 57 from London A rollercoaster ride: that’s how I would describe my physical and mental health since my mid 40s. Although...

Jane Green MBE
Jul 12, 20222 min read
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Accidents happen in slow time- How being labelled a hypochondriac affects all your life. I went for a little walk...
Jane Green MA Ed. What happened? July 1st 2019, I went for a little walk. My left foot sunk into a soft dip in the grass verge which...

Jane Green MBE
Jul 1, 20225 min read
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Trying to arrange care as a young person with complex needs + hEDS
By Grace Thompson, 19 near Brighton in Sussex It is normal to want independence from your parents as you grow up, and it is not always...

Jane Green MBE
Jun 13, 20222 min read
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Insoles and the Hypermobile Foot (Hypermobility HM Foot)
Advice Piece written by SEDSConnective Advisor Josh Oguntade People often do not know what happens when or why you need an insole. Very...

Jane Green MBE
May 23, 20221 min read
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Bridging the Gap
BLOG PIECE - Karen Windsor - Lymphatic Reflexologist Therapist – Mindfulness Coach. Age 41 - East Grinstead I am diagnosed with 8...

Jane Green MBE
May 10, 20222 min read
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One Big Day!
One Big day was an event hosted on 29th April 2022, for family and friend carers living in West Sussex. Hosted by Carers Support West...

Jane Green MBE
May 3, 20221 min read
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TES Article: Autism : 5 Adjustments Needed in your Classroom
ARTICLE published by TES Magazine - 7th April 2022 - written by Jane Green MA Ed. Educationalist and Chair of SEDSconnective, Jane Green...

Jane Green MBE
Apr 15, 20221 min read
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'Carers are more than systems and processes'
https://www.scie.org.uk/news/opinions/autism-acceptance Blog by SEDSConnective Chair and Founder Jane Green MA Ed. and Trustee at the...

Jane Green MBE
Apr 15, 20221 min read
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AutismAcceptance Health Care Needs in Sussex!
2nd April 2022, SEDS worked with local landmarks in Crawley and Brighton to GoGold for AutismAcceptance Day

Jane Green MBE
Apr 4, 20222 min read
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Autism Acceptance Day
ARTICLE for Carers Support West Sussex by Jane Green, 2nd April 2022 Traditionally April 2nd has been known as Autism Awareness Day with...

Jane Green MBE
Apr 1, 20221 min read
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Orthotics and Ehlers-Danlos syndromes and symptomatic hypermobility.
Supporting the ankle joint and the smaller joints in the foot Joshua Oguntade BSc (Hons), MSc, MBAPO Senior Orthotist. My name is Joshua...

Jane Green MBE
Mar 10, 20222 min read
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Living with Inflammatory Bowel Disease and Symptomatic Hypermobility
Jackie - Age 46 from West Sussex, UK Having been diagnosed with Crohns’ in my late teens, I have spent the last 30 years trying to manage...

Jane Green MBE
Feb 18, 20222 min read
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Ballet dancing with Hypermobility EDS (hEDS)
By Bonnie Southgate age 56, SEDS Rehabilitation and Corrective Exercise Specialist What do you think when you see a ballet dancer on...

Jane Green MBE
Feb 7, 20222 min read
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Diagnosis- Rare or not rare and the links.....
Autism was considered rare less that 30 years ago at around 2-4 per 1000. Diagnosis was mainly boys and those with learning disabilities....

Jane Green MBE
Feb 4, 20221 min read
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Autistic, ADHD, TS people 2 x more likely to be hypermobile, and experience more pain
NEW RESEARCH - Led by Dr Eccles, SEDS Patron and Brighton & Sussex Medical School (BSMS) and funded by the MRC, MQ Mental Health Research...

Jane Green MBE
Feb 2, 20221 min read
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"But you don't look ill..." - Masking Pain
BLOG by Rachel Perry, 51, Brighton Many years ago I was sent to a pain clinic which just made me angry. They recommended that I merely...

Jane Green MBE
Jan 31, 20223 min read
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Pain
blog by Jane Green MA Ed Acute Nociceptive Pain The reason I say ….….if my senses recognise it, is because I have differences in my...

Jane Green MBE
Jan 20, 20221 min read
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The challenge of sitting...
BLOG PIECE by Natalie Gibellini (Sussex Ehlers-Danlos and Hypermobility Disorders (SEDS) Alexander Technique Practitioner) "My...

Jane Green MBE
Jan 13, 20222 min read
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Autism Peer Support - What is still needed?
Autism Peer Support Until the 15th January you can have your say on what core capabilities are needed for autism peer support workers. ...

Jane Green MBE
Jan 2, 20221 min read
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Merry Christmas
You’re very dear to us and we are grateful for all your support May you have a restful festive period, from all of us to all of you, if...

Jane Green MBE
Dec 24, 20211 min read
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Autism Peer Support
Autism Peer Support Until the 15th January to have your say on what core capabilities are needed for autism peer support workers. The...

Jane Green MBE
Dec 17, 20211 min read
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Social Enterprise Day!
Written by Becky Orpin Sussex Ehlers Danlos Syndromes and Hypermobility Disorders CIC - Founded in 2018 by Jane Green. Initially set up...

Jane Green MBE
Nov 11, 20213 min read
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