Crossing Borders, Connecting Worlds: My Journey with Neurodivergence and Connective Tissue Disorders
Dr Kana Grace, PhD Neurodivergent neurodivergence advocate and researcher Okinawa, Japan @kanabaletti https://linktr.ee/kanagrace...
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Jane Green MBE
Dec 23, 20230 min read
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Jane Green MBE
Oct 31, 20234 min read
ARFID or MALS - It's not 'all in your head'
Median Arcuate Ligament Syndrome (MALS) – the exhausting fight to find out the rare cause of your pain when your doctors tell you it's...
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SEDSConnective
Oct 5, 20232 min read
The Investiture of Jane Green MBE at Windsor Castle by HRH Prince William 4th October 2023
Trailblazing Advocate and Founder of SEDSConnective, Jane Green, Awarded MBE at Windsor Castle Jane Green MBE FCCT comments: “My only...
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SEDSConnective
Aug 11, 20232 min read
The Lying Down Work in Alexander Sessions (‘Constructive Rest’) - Part II
by Natalie Gibellini - Alexander Technique Teacher When I work with someone who is lying on the table, usually I put my hands on the back...
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SEDSConnective
Jul 12, 20232 min read
Connective Tissue Disorders and Autism?
by Rosie Baruah 46 Consultant in Intensive Care Medicine, University of Edinburgh Explanations are important to me. I find reassurance...
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Jane Green MBE
Jun 28, 20233 min read
I am MORE than my history- Eating issues or not?
Having a history of any illness is hard, but when trying to advocate that your symptoms are not due to your history is even harder....
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SEDSConnective
Jun 26, 20231 min read
SEDSConnective Charity Delivers 5th Year of Strong Advocacy for the Neurodivergent Community
Happy 5th Birthday to us! SEDSConnective are celebrating our demi-decade anniversary today (Monday 26 June 2023) for helping members of...
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Jane Green MBE
May 31, 20234 min read
I co-wrote co-occuring Physical Health Challenges in Neurodivergent CYP and this is why...
by Jane Green MBE MA Ed. Chair and Founder of SEDSConnective As a child, my education was poor. I moved internationally seven times...
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Jane Green MBE
May 12, 20233 min read
What is MCAS? "When mast cells flare the ‘storm’ gathers pace"
These are our ‘allergy’ cells, and the first responders to
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Jane Green MBE
Apr 27, 20232 min read
'Those who most need health or social care tends to be the those who least receive it' J Tudor
by Jane Green MBE Imagine being disabled, chronically ill and perhaps even a carer for similar in your family network yet often not...
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SEDSConnective
Apr 18, 20232 min read
Ever wondered what it's like as an Autistic Pain Researcher?
"Even though I am autistic myself, I learn so much through these interactions about the different ways autism, pain and even research...
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SEDSConnective
Mar 27, 20231 min read
Lipoedema and the Immune System
New paper on how the immune system influences lipoedema A summary of “A distinct M2 macrophage infiltrate and transcriptomic profile...
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SEDSConnective
Mar 6, 20231 min read
Rare or Rarely Believed? Jane's Story
Blog by Jane Green for Rare Diseases UK as part of Rare Disease Day 2023 Jane Green MBE, Chair and Founder of SEDSConnective a...
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Jane Green MBE
Feb 15, 20232 min read
Hypermobility in physiotherapy education
My name is Katie, I’m 25 years old from East Sussex. I am currently a third year physiotherapy BSc student at the University of...
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joanna405
Feb 13, 20231 min read
Age warning- Time to talk about sex and intimate relations
We asked you to share the ups and downs, and ins and outs , of sex and intimate relations if you are one of us with...
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Jane Green MBE
Feb 8, 20232 min read
Co-Occurring Physical Health Challenges in Neurodivergent Children & Young People: A Topical Review
Click on hyperlink below to read the actual Paper. https://www.tandfonline.com/doi/full/10.1080/13575279.2022.2149471 This is an easy...
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joanna405
Feb 2, 20232 min read
Getting Connected in Crawley
On Monday 30th January 2023 the SEDSConnective workshop/demonstration day took place in Crawley, welcoming the Worshipful Mayor of...
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joanna405
Jan 20, 20231 min read
New research: Co-occurring health challenges for children and young people
The first publication on neurodivergence (Autism, ADHD, dyspraxia +) and hypermobilty conditions, such as JHS and EDS , in education...
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Jane Green MBE
Dec 31, 20224 min read
MBE - me ?
I am deeply honoured and humbled to receive an MBE for my voluntary services to neurodivergent people (autistic, dyspraxic, ADHD,...
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SEDSConnective
Dec 5, 20222 min read
The Lying Down Work in Alexander Sessions (‘Constructive Rest’) Part I
During an Alexander Technique session, usually I offer the option to lie on my teaching table. Although it is not essential to...
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SEDSConnective
Dec 1, 20222 min read
Making the Connections: A history of hypermobility research new study out! SEDSConnective webinar
SEDSConnective held an exciting webinar on 20th November 2022, where we heard from Dr Jessica Eccles, Clinical Senior Lecturer and our...
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Jane Green MBE
Oct 28, 20223 min read
Our Autumn Newsletter 2022 We are making a difference!
Welcome to our Autumn Newsletter! We are the only expert by experience and voluntary led charity for symptomatic hypermobility...
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Jane Green MBE
Oct 18, 20222 min read
WorldMenopauseDay 18th October- The doctors said I was normal range- but my body had had enough: Red ants were the final straw
The doctors said I was normal range- but my body had had enough
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