The Power and Potential of Peer support
By Sue Freeman, 57 from London A rollercoaster ride: that’s how I would describe my physical and mental health since my mid 40s. Although...
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jane green
- Jul 1, 2022
- 5 min
STORY TIME : My interoception sense of pain and past issues
Jane Green MA Ed. What happened? July 1st 2019, I went for a little walk. My left foot sunk into a soft dip in the grass verge which...
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jane green
- Jun 13, 2022
- 2 min
Trying to arrange care as a young person with complex needs + hEDS
By Grace Thompson, 19 near Brighton in Sussex It is normal to want independence from your parents as you grow up, and it is not always...
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jane green
- May 27, 2022
- 7 min
Told I was dim, weird, often absent from school- reasons to create the first EDS JHS schooltoolkit
Today May 27th 2022, is the anniversary of the first ever school toolkit for Ehlers-Danlos Syndromes, Joint Hypermobility syndromes and...
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jane green
- May 23, 2022
- 1 min
Insoles and the Hypermobile Foot (Hypermobility HM Foot)
Advice Piece written by SEDSConnective Advisor Josh Oguntade People often do not know what happens when or why you need an insole. Very...
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jane green
- May 10, 2022
- 2 min
Bridging the Gap
BLOG PIECE - Karen Windsor - Lymphatic Reflexologist Therapist – Mindfulness Coach. Age 41 - East Grinstead I am diagnosed with 8...
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jane green
- May 3, 2022
- 1 min
One Big Day!
One Big day was an event hosted on 29th April 2022, for family and friend carers living in West Sussex. Hosted by Carers Support West...
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jane green
- Apr 15, 2022
- 1 min
TES Article: Autism : 5 Adjustments Needed in your Classroom
ARTICLE published by TES Magazine - 7th April 2022 - written by Jane Green MA Ed. Educationalist and Chair of SEDSconnective, Jane Green...
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jane green
- Apr 15, 2022
- 1 min
'Carers are more than systems and processes'
https://www.scie.org.uk/news/opinions/autism-acceptance Blog by SEDSConnective Chair and Founder Jane Green MA Ed. and Trustee at the...
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jane green
- Apr 6, 2022
- 1 min
Thank You Waitrose Community Matters!
THANK YOU to Waitrose Community Matters for generously granting SEDS £333.00 funding towards members' activities. These funds are so...
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jane green
- Apr 4, 2022
- 2 min
AutismAcceptance Health Care Needs in Sussex!
2nd April 2022, SEDS worked with local landmarks in Crawley and Brighton to GoGold for AutismAcceptance Day
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jane green
- Apr 1, 2022
- 1 min
Autism Acceptance Day
ARTICLE for Carers Support West Sussex by Jane Green, 2nd April 2022 Traditionally April 2nd has been known as Autism Awareness Day with...
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jane green
- Mar 19, 2022
- 1 min
The Links between Fibromyalgia, Hypermobility and Neurodivergence
https://www.touchimmunology.com/fibromyalgia/journal-articles/the-links-between-fibromyalgia-hypermobility-and-neurodivergence/...
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jane green
- Mar 10, 2022
- 2 min
Orthotics and Ehlers-Danlos syndromes and symptomatic hypermobility.
Supporting the ankle joint and the smaller joints in the foot Joshua Oguntade BSc (Hons), MSc, MBAPO Senior Orthotist. My name is Joshua...
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jane green
- Feb 18, 2022
- 2 min
Living with Inflammatory Bowel Disease and Symptomatic Hypermobility
Jackie - Age 46 from West Sussex, UK Having been diagnosed with Crohns’ in my late teens, I have spent the last 30 years trying to manage...
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jane green
- Feb 7, 2022
- 2 min
Ballet dancing with Hypermobility EDS (hEDS)
By Bonnie Southgate age 56, SEDS Rehabilitation and Corrective Exercise Specialist What do you think when you see a ballet dancer on...
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jane green
- Feb 4, 2022
- 1 min
Diagnosis- Rare or not rare and the links.....
Autism was considered rare less that 30 years ago at around 2-4 per 1000. Diagnosis was mainly boys and those with learning disabilities....
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jane green
- Feb 2, 2022
- 1 min
Autistic, ADHD, TS people 2 x more likely to be hypermobile, and experience more pain
NEW RESEARCH - Led by Dr Eccles, SEDS Patron and Brighton & Sussex Medical School (BSMS) and funded by the MRC, MQ Mental Health Research...
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jane green
- Jan 31, 2022
- 3 min
"But you don't look ill..." - Masking Pain
BLOG by Rachel Perry, 51, Brighton Many years ago I was sent to a pain clinic which just made me angry. They recommended that I merely...
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jane green
- Jan 20, 2022
- 1 min
Pain
blog by Jane Green MA Ed Acute Nociceptive Pain The reason I say ….….if my senses recognise it, is because I have differences in my...
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