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Rare or Rarely Believed? Jane's Story

Blog by Jane Green for Rare Diseases UK as part of Rare Disease Day 2023


Jane Green MBE, Chair and Founder of SEDSConnective a neurodivergent and symptomatic hypermobility (Ehlers-Danlos and Hypermobility Spectrum Disorders – HSD) voluntary social mobility charity.


Blog originally shared on 06th March 2023

By mhamer


I was diagnosed with what was known as EDS3, now known as hypermobile Ehlers-Danlos Syndrome (hEDS) in 2015, aged 53. It is a heritable and complex connective tissue disorder that affects the whole body and generally, hEDS seems to be more symptomatic in girls, women and non-binary people...


Read Jane's full blog for Rare Disease UK here:


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