SEDSConnective is a pioneering, volunteer-led charity supporting individuals with both symptomatic hypermobility (including Ehlers-Danlos Syndromes, Hypermobility Spectrum Disorders and associated conditions) and neurodivergence (including Autism, ADHD, Dyspraxia, Tourette’s Syndrome, Dyslexia and more).
Founded in 2018 by Jane Green MBE, SEDSConnective has grown from a grassroots initiative in Sussex, UK, into a multi-award-winning charity with international reach. We support individuals, families, carers, and professionals across health, education, employment, transport accessibility and social care.

 

Our mission is to:
       • Raise awareness of the link between hypermobility and neurodivergence.

       • Improve outcomes for those affected.

       • Transform lives by providing resources, fostering community inclusion, and promoting awareness.

We are entirely user-led and powered by our passionate team of volunteers.

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The role

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This is not a typical Executive Assistant position. We are seeking an experienced, highly proactive, and resilient professional who can act as a strategic partner to our Chair, Jane Green MBE. The role demands exceptional organisational skills, operational strength, foresight and the ability to anticipate needs and act but also to be emotionally intelligent. The Chair is very active (often outside of conventional hours, including evenings and weekends), and the successful candidate must be comfortable with a flexible and responsive style of working. You will be critical to the smooth and professional running of the charity, supporting governance, communications and operations at pace. While the role is primarily remote, the ability to travel to Crawley, Sussex (or be based nearby) for occasional in-person meetings is desirable.

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Key Responsibilities

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Executive Support & Partnership

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• Serve as the Chair’s right hand, ensuring priorities are managed effectively and deadlines met.

•  Proactively anticipate needs, solve problems and prepare information in advance.

• Manage inboxes, correspondence and calendars with professionalism and discretion.

• Coordinate multiple schedules, meetings, groups and follow-up actions across the organisation and external partners.

• Ensuring outcomes are followed through and met

 

Meetings & Governance

 

• Organise and manage online meetings (Teams, Zoom, Google Docs, WhatsApp), including complex scheduling and breakout sessions. • Prepare agendas, take accurate minutes, and ensure timely follow-up.

• Support volunteer, adviser and trustee board administration.
  
  Operations & Events

• Oversee logistics for training sessions, webinars, events, and stakeholder engagement.

• Maintain digital filing systems and platforms (Microsoft Teams, SharePoint, Office 365, Google Docs or social media).

• Coordinate different sections and ensure projects and dates are on schedule.

• Support stakeholder communications and relationship management at all levels. Research & Digital Support.

• Conduct research and prepare briefing materials for the Chair.

• Support digital tools and online communication, including social media where relevant.

• Explore and apply AI and new technologies to streamline processes.