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Research- Largest Global study hEDS HSD (hypermobility)
A groundbreaking international survey sheds light on the hidden struggles of thousands living with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders
SEDSConnective
Aug 95 min read
It’s Not Just in Your Head...hidden stuggles of neurodivegent health (hypermobilty)
'groundbreaking era of neuroscience'
'masking pain invalidates your self worth'
SEDSConnective
Jun 72 min read
Autism Acceptance Of Brain/Body
'Connecting Autism to Physical Health (Hypermobility)'
SEDSConnective
Mar 313 min read
'You don't know what you don't know'
We may all be “experts” in our own experiences, but memory is fallible, and our recollections can be shaped by emotions, biases, and the
SEDSConnective
Feb 262 min read
Health challenges with hypermobility, Autism ADHD x 4
As a family we don’t fit neatly into boxes. Our bodies and our brains are different.
Jane Green MBE
Oct 31, 20242 min read
Autism, Anxiety and interoception
I was often told 'it was all in my head'
Jane Green MBE
Oct 12, 20243 min read
Rejection Sensory Dysphoria ?
The chances I had to have a relationship have been few and far between and because I push people away.
SEDSConnective
Sep 22, 20242 min read
Why does it matter? Traumatisation of patients by some clinicians
Warning: mentions suicidal / trauma In case you missed this paper (below) it is about traumatisation of people with hypermobility...
Jane Green MBE
May 26, 20242 min read
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