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Research- Largest Global study hEDS HSD (hypermobility)
A groundbreaking international survey sheds light on the hidden struggles of thousands living with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders
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Aug 9, 20255 min read
Connective Bodies/Brains - Hypermobility EDS,JH and Neurodivergence (Autism ADHD +)
Emerging research is revealing strong links between neurodivergent conditions such as Autism, ADHD, Dyspraxia, Tourette's dyslexia and physical traits like joint hypermobility, Ehlers–Danlos syndromes and other connective tissue differences.
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Aug 9, 20251 min read
It’s Not Just in Your Head...hidden stuggles of neurodivegent health (hypermobilty)
'groundbreaking era of neuroscience'
'masking pain invalidates your self worth'
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Jun 7, 20252 min read
Tourette's helped me embrace the unknowns of chronic illness- hypermobility & Neurodivergence
As a child, my tics and Tourettic Obsessive Compulsive Disorder (OCD) were so severe that I spent four years unable to dress myself and had no free time to do anything fun
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May 31, 20253 min read
Hypertension and Hypermobility: A Hidden Risk as We Age
When we think of hypermobility, we often focus on joint flexibility, pain, executive functioning, instability, internal pain, fatigue,...
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May 17, 20253 min read
Autism Acceptance Of Brain/Body
'Connecting Autism to Physical Health (Hypermobility)'
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Mar 31, 20253 min read
'You don't know what you don't know'
We may all be “experts” in our own experiences, but memory is fallible, and our recollections can be shaped by emotions, biases, and the
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Feb 26, 20252 min read
POTS and hypovolemia
Dysautonomia is dysfunction of the autonomic nervous system, which controls essential functions like heart rate, blood pressure,...
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Oct 28, 20242 min read
Autism, Anxiety, mcas and interoception
I was often told 'it was all in my head'
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Oct 12, 20243 min read
What is Dysautonomia?
It is a malfunction of the Autonomic Nervous System - there are 3 systems ...
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Oct 9, 20241 min read
Freezing from the inside out!
Core body temperature is usually around 36-38°c. Medication, weather can affect body temperature, as can other hormones, allergies or...
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Apr 16, 20211 min read
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