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What Makes Lipoedema Fat Different? The role of the immune system
It's often misdiagnosed as obesity or lymphedema (fluid retention)
SEDSConnective
Aug 42 min read
It’s Not Just in Your Head...hidden stuggles of neurodivegent health (hypermobilty)
'groundbreaking era of neuroscience'
'masking pain invalidates your self worth'
SEDSConnective
Jun 72 min read
Tourette's helped me embrace the unknowns of chronic illness- hypermobility & Neurodivergence
As a child, my tics and Tourettic Obsessive Compulsive Disorder (OCD) were so severe that I spent four years unable to dress myself and had no free time to do anything fun
SEDSConnective
May 313 min read
The School Toolkit for EDS / JHS: the journey behind it and beyond...
I did this voluntarily as I firmly believed children and young people, education staff needed this now and for future generations
SEDSConnective
May 258 min read
Autism Acceptance Of Brain/Body
'Connecting Autism to Physical Health (Hypermobility)'
SEDSConnective
Mar 313 min read
'You don't know what you don't know'
We may all be “experts” in our own experiences, but memory is fallible, and our recollections can be shaped by emotions, biases, and the
SEDSConnective
Feb 262 min read
New Study : Hypermobility and emotions are linked to the brain
'People with hypermobility who also feel very anxious had busier brain activity ...'
SEDSConnective
Feb 81 min read
Health challenges with hypermobility, Autism ADHD x 4
As a family we don’t fit neatly into boxes. Our bodies and our brains are different.
Jane Green MBE
Oct 31, 20242 min read
What is Inclusion week? Why does it matter ?
We ask to be heard, included and coproduce initiatives in all areas with equality and equity.
SEDSConnective
Sep 25, 20242 min read
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