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Research- Largest Global study hEDS HSD (hypermobility)
A groundbreaking international survey sheds light on the hidden struggles of thousands living with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders
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Aug 9, 20255 min read
Connective Bodies/Brains - Hypermobility EDS,JH and Neurodivergence (Autism ADHD +)
Emerging research is revealing strong links between neurodivergent conditions such as Autism, ADHD, Dyspraxia, Tourette's dyslexia and physical traits like joint hypermobility, Ehlers–Danlos syndromes and other connective tissue differences.
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Aug 9, 20251 min read
What Makes Lipoedema Fat Different? The role of the immune system
It's often misdiagnosed as obesity or lymphedema (fluid retention)
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Aug 4, 20252 min read
Oh my GERD or GORD!
It’s one of the more common digestive disorders seen with symptomatic hypermobility GERD GORD
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Aug 3, 20252 min read
It’s Not Just in Your Head...hidden stuggles of neurodivegent health (hypermobilty)
'groundbreaking era of neuroscience'
'masking pain invalidates your self worth'
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Jun 7, 20252 min read
Tourette's helped me embrace the unknowns of chronic illness- hypermobility & Neurodivergence
As a child, my tics and Tourettic Obsessive Compulsive Disorder (OCD) were so severe that I spent four years unable to dress myself and had no free time to do anything fun
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May 31, 20253 min read
The School Toolkit for EDS / JHS: the journey behind it and beyond...
I did this voluntarily as I firmly believed children and young people, education staff needed this now and for future generations
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May 25, 20258 min read
Hypertension and Hypermobility: A Hidden Risk as We Age
When we think of hypermobility, we often focus on joint flexibility, pain, executive functioning, instability, internal pain, fatigue, gastrointestinal issues. The issues with neurodivergence mean that due to our interoceptive and propriocetive senses being impaired we are more unaware of any signals. But did you know that hypermobility can also affect your blood pressure? This connection is often misunderstood, but it’s critical especially as we age. We are often not believe
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May 17, 20253 min read
Autism Acceptance Of Brain/Body
'Connecting Autism to Physical Health (Hypermobility)'
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Mar 31, 20253 min read
RSD: The Invisible Pain of Rejection Sensitive Dysphoria
Do your emotions hit like a tidal wave? Have you ever felt an overwhelming emotional response so intense that it physically hurts? A sudden wave of shame, embarrassment, sadness or anger at others that feels unbearable? Do other people find your reactions extreme or puzzling? If so, you might be experiencing Rejection Sensitive Dysphoria (RSD) , a phenomenon often associated with ADHD and Autism. What is RSD? RSD is an extreme emotional response to perceived or actual rejecti
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Feb 16, 20252 min read
My Developmental Coordination Disorder (dyspraxia)
“Around 3-5% of adults in the UK are thought to have some kind of dyspraxia or DCD (Developmental Coordination Disorder)”
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Nov 29, 20243 min read
Health challenges with hypermobility, Autism ADHD x 4
As a family we don’t fit neatly into boxes. Our bodies and our brains are different.
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Oct 31, 20242 min read
What is Gastroparesis?
For the worst days, foods that will move with gravity, like shakes or liquids are generally going to be the best option.
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Jul 31, 20242 min read
WorldMenopauseDay 18th October- The doctors said I was normal range- but my body had had enough: Red ants were the final straw
The doctors said I was normal range- but my body had had enough
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Oct 18, 20222 min read
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