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Research- Largest Global study hEDS HSD (hypermobility)
A groundbreaking international survey sheds light on the hidden struggles of thousands living with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders

SEDSConnective
Aug 95 min read


Connective Bodies/Brains - Hypermobility EDS,JH and Neurodivergence (Autism ADHD +)
Emerging research is revealing strong links between neurodivergent conditions such as Autism, ADHD, Dyspraxia, Tourette's dyslexia and physical traits like joint hypermobility, Ehlers–Danlos syndromes and other connective tissue differences.

SEDSConnective
Aug 91 min read


What Makes Lipoedema Fat Different? The role of the immune system
It's often misdiagnosed as obesity or lymphedema (fluid retention)

SEDSConnective
Aug 42 min read


Oh my GERD or GORD!
It’s one of the more common digestive disorders seen with symptomatic hypermobility GERD GORD

SEDSConnective
Aug 32 min read


It’s Not Just in Your Head...hidden stuggles of neurodivegent health (hypermobilty)
'groundbreaking era of neuroscience'
'masking pain invalidates your self worth'

SEDSConnective
Jun 72 min read


Tourette's helped me embrace the unknowns of chronic illness- hypermobility & Neurodivergence
As a child, my tics and Tourettic Obsessive Compulsive Disorder (OCD) were so severe that I spent four years unable to dress myself and had no free time to do anything fun

SEDSConnective
May 313 min read


The School Toolkit for EDS / JHS: the journey behind it and beyond...
I did this voluntarily as I firmly believed children and young people, education staff needed this now and for future generations

SEDSConnective
May 258 min read


Hypertension and Hypermobility: A Hidden Risk as We Age
When we think of hypermobility, we often focus on joint flexibility, pain, executive functioning, instability, internal pain, fatigue,...

SEDSConnective
May 173 min read


Autism Acceptance Of Brain/Body
'Connecting Autism to Physical Health (Hypermobility)'

SEDSConnective
Mar 313 min read


RSD: The Invisible Pain of Rejection Sensitive Dysphoria
Do your emotions hit like a tidal wave? Have you ever felt an overwhelming emotional response so intense that it physically hurts? A...

Jane Green MBE
Feb 162 min read


My Developmental Coordination Disorder (dyspraxia)
“Around 3-5% of adults in the UK are thought to have some kind of dyspraxia or DCD (Developmental Coordination Disorder)”

SEDSConnective
Nov 29, 20243 min read


Health challenges with hypermobility, Autism ADHD x 4
As a family we don’t fit neatly into boxes. Our bodies and our brains are different.

Jane Green MBE
Oct 31, 20242 min read


What is Gastroparesis?
For the worst days, foods that will move with gravity, like shakes or liquids are generally going to be the best option.

SEDSConnective
Jul 31, 20242 min read


WorldMenopauseDay 18th October- The doctors said I was normal range- but my body had had enough: Red ants were the final straw
The doctors said I was normal range- but my body had had enough

Jane Green MBE
Oct 18, 20222 min read
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