top of page
Blog
Common searches
Search
Research- Largest Global study hEDS HSD (hypermobility)
A groundbreaking international survey sheds light on the hidden struggles of thousands living with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders
-
Aug 9, 20255 min read
Connective Bodies/Brains - Hypermobility EDS,JH and Neurodivergence (Autism ADHD +)
Emerging research is revealing strong links between neurodivergent conditions such as Autism, ADHD, Dyspraxia, Tourette's dyslexia and physical traits like joint hypermobility, Ehlers–Danlos syndromes and other connective tissue differences.
-
Aug 9, 20251 min read
What Makes Lipoedema Fat Different? The role of the immune system
It's often misdiagnosed as obesity or lymphedema (fluid retention)
-
Aug 4, 20252 min read
Oh my GERD or GORD!
It’s one of the more common digestive disorders seen with symptomatic hypermobility GERD GORD
-
Aug 3, 20252 min read
It’s Not Just in Your Head...hidden stuggles of neurodivegent health (hypermobilty)
'groundbreaking era of neuroscience'
'masking pain invalidates your self worth'
-
Jun 7, 20252 min read
Tourette's helped me embrace the unknowns of chronic illness- hypermobility & Neurodivergence
As a child, my tics and Tourettic Obsessive Compulsive Disorder (OCD) were so severe that I spent four years unable to dress myself and had no free time to do anything fun
-
May 31, 20253 min read
The School Toolkit for EDS / JHS: the journey behind it and beyond...
I did this voluntarily as I firmly believed children and young people, education staff needed this now and for future generations
-
May 25, 20258 min read
Hypertension and Hypermobility: A Hidden Risk as We Age
When we think of hypermobility, we often focus on joint flexibility, pain, executive functioning, instability, internal pain, fatigue,...
-
May 17, 20253 min read
Autism Acceptance Of Brain/Body
'Connecting Autism to Physical Health (Hypermobility)'
-
Mar 31, 20253 min read
RSD: The Invisible Pain of Rejection Sensitive Dysphoria
Do your emotions hit like a tidal wave? Have you ever felt an overwhelming emotional response so intense that it physically hurts? A...
-
Feb 16, 20252 min read
My Developmental Coordination Disorder (dyspraxia)
“Around 3-5% of adults in the UK are thought to have some kind of dyspraxia or DCD (Developmental Coordination Disorder)”
-
Nov 29, 20243 min read
Health challenges with hypermobility, Autism ADHD x 4
As a family we don’t fit neatly into boxes. Our bodies and our brains are different.
-
Oct 31, 20242 min read
What is Gastroparesis?
For the worst days, foods that will move with gravity, like shakes or liquids are generally going to be the best option.
-
Jul 31, 20242 min read
WorldMenopauseDay 18th October- The doctors said I was normal range- but my body had had enough: Red ants were the final straw
The doctors said I was normal range- but my body had had enough
-
Oct 18, 20222 min read
bottom of page